Island Blog – A Letter

Ten days since you died my husband. One week till your hillside funeral. All of your family think of you every minute, probably more often than even that. Memories come back, moments resurrect and stand tall, blocking our path. And yet we move on, doing normal things with an abnormal head on and a heart all flapdoodle but still beating. Mine feels like wings, as if there’s a bird trapped behind my ribcage unable to escape.

This morning I cleaned your room, now that all the hospital kit has gone. I took my palette knife and some white filler for all the many holes left in the walls, holes that remind me of hand rails and other attractive supports, no longer needed. Neither are the holes. There is a big enough one in me and in our little island home, even if I can move about more freely. The furniture is not pinned to the edges any more for easier wheelchair access. Actually, I did think you were a bit over the top in that particular demand. A wheelchair isn’t that wide, after all. Then I realised you had lost your innate spacial awareness and the evidence of that loss is scraped along doors and lintels and walls. You were pretty nippy in that chair, nonetheless, turning on a sixpence, making U turns and scoots forward when space allowed, and even lurching at great speed down the ghastly yellow ramp which is now looking for a new home.

The leaves are beginning to turn now. Conkers (we always looked for them didn’t we?) are landing on the track but I haven’t found a big one yet. You told me you always won conker battles and you also told me that you soaked them in vinegar overnight, making them like concrete. Scabious peppers the grassy banks finding the best sunshine spots. I saw 6 kittiwakes the other day, your favourite bird, flying seaward up the loch. I don’t think I have ever seen them here before. They came just for you.

The garden is looking a tad tatterlicious and the sweet peas gave up fighting the last big wind, but even broke-backed they bloom and their scent keeps wafting indoors, reminding me how much you loved them. I pick them for the house but soon they will be over for the year. Season rolls into season. You knew the sound of each one, its taste, its demands and its gifts. As one thing dies, another begins to live and that is how you saw life and death – the same circle, a never-ending story.

I am so happy that your dying was peaceful. No fight at all, no panic, no fear, just a soft leaving. And you wanted to go, you said so, to anybody who was listening. And so it is and was and ever will be when someone who cherished every second of a long adventurous life finds the living just too much. We didn’t want you to go but knew you did. We also knew that your living state was very compromised. But even at the last, your humour shone through those cloudy old eyes. Even knowing that the Great Beyond was calling you, hands held out in welcome, you whispered to me ‘ I don’t want to leave you.’

And then, you did.

Island Blog – Shift, Fly and a Dog’s Questions

This afternoon I walked into Tapselteerie, as I do every single afternoon, small terrier bounding afoot. She is always full of ridickerluss bounce as if we have never walked this way before; as if she and I are about to discover a gruffalo nest or a ferocean of fairies. I pointed out the conkers to her, the star moss, the positive pebbles I hid that someone has moved on, but she just looked at me like I was a weirdo. Her plan is to locate the biggest and longest stick she can find and then lift. She waits for me to forward, then runs full tilt, whacking the backs of my legs with half a hazel tree, thinking it hilarious and most satisfying. I don’t mind. She thinks I don’t know what’s coming, but my advantage is my human brain. I have worked out the math of this particular pole, considered the level of scratchy branch activity, the then width of the track, the level of recent rainfall and its ability to soak my calves. It’s a daily game and only infrequently I am required to say enough is enough. This day was one of those times. The pole would have held up an elephant’s weary head, no bother.

Up in the woods I heard childlaughter, my favourite sort. Poised on a rock and looking like a dream, a little girl squeaks with delight as her father completes the construction of a swing. I can see she will begin on the rock, but the fall away of the hill and the subsequent leap into the sky takes her 20 foot off the ground. She is tiny, wiry, slim and excited and I want to hide. I see a thousand disasters, but she sees none of them and nor does her father. He has swung many times higher in his time, almost to the moon and back, and, for all I know, touching moon base. He is, after all, my son and all of my children are risk takers and always were. I have no idea where they got that from. After successful launch, momentary panic as she looks down to see the blue planet below her tiny butt, followed by a happy landing back on the rock, the game is on, the shift from land to outer space completed.

Back home there is a shift. A sudden shift. In the journey that is dementia, this is oft how it works. Plateau, shift, level out, plateau and shift again. Everyone involved needs to catch up, learn, accept, take action. This is where we are now. Just 2 weeks ago the plateau felt like it was staying flat, for some long time, with only little skips and twirls that showed a gradual demise. But now on this road, the pilgrim has met landfall and it seems there is no way around it for him. He doesn’t want to eat, cannot move anywhere or anyway without help. We, his family, are coming to terms with that but I won’t say it is a natural nor an easy thing to come to terms with nor accept. How could it be? This is Dad. This is the strong provider of 50 years and then some, the one who knew the answers to everything and, if he didn’t, never let on. I remember a violently horrific North Sea crossing when I was so terrified I thought I would faint clean away (but didn’t), with a force 10 gale battering our boat, full sails up because it had come in so fast there was no time to reduce, nor crew (me being terrified) to strap on, walk the slippery deck in lashing rain, and then find the strength to work the winch. But, and but again, he never left the helm, navigated us home to within a few maritime feet of home harbour, using his skills and whatever stars he glimpsed. 17 hours of rocking and no soft cradle in sight, but he got us home and intact. This is the Dad who took risks, flew high and taught all of us to trust in him and to shut up and fly.

This shift is tough. I want to reach out to anyone and everyone who is going through this end game or who has gone through it. My utmost respect and admiration to you all.

Even the dog knows something’s up. She keeps looking at me, a million questions in her eyes.