breast cancer

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Island Blog – Paucity, Abundance, the Tallyman

It has now been just over four weeks since radiotherapy. Feels like four months, at times, so damn tired am I, and being tired is one hell of a pain in the aspidistra. If, when, I allow myself to indulge in self pity I wander into a day of paucity thinking. Not my thing at all. I don’t do paucity nor any other city, for that matter. I am an abundance thinker, dance being right up there for me. I have danced through apocalyptical landscapes over the years, moving purposefully along and crunching paucity underfoot, en route to heaven knew where, anywhere but there. I believed, and still believe, that moving onwards takes me to the beyond of, not only my skinny et collapso thinking, but also of the barren scape within which I appeared to be currently stuck. This tactic has worked well and still does. But the biggest bore seems to have roosted in my eaves. Tiredness, all day, and not just that neither, or is it either(?) for feeling consistently weary is not cheery, and although I have been told, oftentimes, to be patient, I am an impatient by nature.

Rising from another patchy night, I wheech myself out of bed, physically able still, and I command paucity to get-to-hec as I gather my abundance into a warm dressing gown as I descend the stairs for coffee and, hopefully, dawn. I know that dawn, bless her, will always come, eventually. As I sip the hot strong brew, black, no sugar, I call in the tallyman. Take a seat, I say, let’s count blessings, which we do, as I write them all down. I had breast cancer, which was discovered quite by chance; I had excellent surgery to remove the blight; I have been fully supported by the NHS, family, friends and others who know what cancer feels like, the shock of it, the concerns around it and the recovery therefrom; I live in the most beautiful place, on an island, alone and independent; I am loved by many; I can write, used to sing, can dance (a bit) and have full use of all my important extras; I have life, love life, live life. Now I need more coffee.

By the time dawn has risen with the birds and their glorious singing, my mind is full of abundance, the whining of paucity barely audible. Yes I am tired, yes I am impatient, yes I have lost a considerable portion of self-confidence, yes I am lonely at times, and scared of life, but who isn’t once over the cusp of 70? In other words, let these words float out into the big wide sky, to dissipate like steam. I say that out loud. Then I hear the door open and turn around. The tallyman winks at me as we both watch abundance holding it open for paucity to slink through. The door closes quietly and we all watch the slinker trudge down to the shore, and then disappear.

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Island Blog – A Crooked- Voiced Crow

I’m hearing sounds unfamiliar to me. Above my hotel lurks a crow with a crooked voice. Sounds to me as if he has wrongly wired vocal chords. I watch him make these strange calls and when a mate joins him on the CCTV camera, it thinks me. I might have, and did, at first, consider him a case for sympathy. With that voice, will he ever attract a mate? The rasp is more ‘Go Away’ than ‘Come Hither’ after all, but how wrong was my judgement on the matter!

Inside the warm and welcoming Maggie’s centre, I watch people. Over there is a man who has throat cancer, his voice, produced via a box implant is a hoarse and raspy whisper, his own voice gone forever. Was he a tenor or a baritone, loud-spoken or honey gentle or a bit of both, depending on circumstances? Did he shout, once, as he will no more, or sing, or summon the troops into battle? I will never know. Then there is the guy who has terminal liver cancer and is just out of hospital. Despite this, he is full of jokes and twinkle, talking to everyone, ready, always ready to laugh.

I watch newbies wander in, eyes darting left and right, looking for a safe landing. I hear the welcomes from the staff, the ‘Come Hither’ in their warm and compassionate eyes. Gradually, the newbie’s coat comes off, she is guided to the kettle, the coffee and the tea, the bowls of fruit, chocolates, biscuits and cake. We sit in sunshine behind the glass walls, talking, wishing each other all the hopes for full recovery. I am aware that some cannot hope for that, but, in talking to them, laughing with them, I can see the cancer slide away from their eyes, just for a moment, an hour, a day. Back home, back into the relentless barrage of tests and therapies, reality may well re-invade, and hope can be a heavy weight to lift up each day, for some. I can afford to play the fool, I am well and ridiculous and always full of mischief. (Mischief…….interesting word to pull apart, methinks.) But, even though I am so lucky, so without pain or a possibly hopeless road ahead, I am accepted because I have cancer. We are a new family and there is much to learn about each other, many random conversations to have, many opportunities within which to uplift each other. If I lived here, I would definitely volunteer in this centre. I would meet and greet, lift and encourage, play the daft eejit, sympathise and sit beside another broken bodied soul. And it isn’t just the one with cancer who needs such. There are partners, children, siblings and friends, all in a permanent state of shock, all battling with an overactive imagination, or with a sharp and agonising truth.

I am learning, as we all must, not to hide our diagnoses nor our feelings around them, but to stand up and out, as survivors, however long that survival might prove to be. To find each other, people we would probably never ever meet, had cancer not found a landing within our trusting bodies, a chink, a broken paving stone, a pothole, an unintentional welcome to a predator. I hear, and see, multi cultures in here. I see all shapes, all sizes, listen to all accents, and all of them are beautiful to me now, in a way they never were before. How easy it is, especially in a city, to march past all of this beauty without even a ‘Hi’. I’ve been ‘Hi-ing’ my walk to my radiotherapy appointment each morning, sometimes to the astonishment of the person coming towards me, so used are they to their own agenda and a perceived unfriendliness of everyone they don’t already know. Mostly, however, I receive a smile and a ‘hi’ back and that thinks me too. We can become so very lonely as we live out our lives, not because we want to, but perhaps through fear, or the ordinary process of keeping our broken parts invisible to all. We cover them in clothes and make-up. We keep our arms close to our bodies, our voices low. But what we all long for, in truth, is connection. We just don’t feel confident enough to reach out for it, to face the risk of rejection, for fear of looking foolish. But if we could just, like the crooked-voiced crow, call out anyway, smile to each other, say ‘Hi’ to a line of folk in a bus stop, a queue for radiotherapy, anywhere, everywhere, I know that loneliness would lift, just a little, and, who knows, it could lead to new friendships, as it has for me.

For anyone interested in learning more about Maggie’s Centres, I am visiting the one in Glasgow, on the Gartnavel Campus, opposite the Beatson Cancer Centre, but these havens of support are everywhere.

Just go to http://www.maggies.org

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Island Blog – A Lift into Sparkle

Oh my gosh was I tired today. I remember so many people answering me ‘tired’ when I asked How are you?, and, I confess, I could feel irritation rise in my gut. I wanted to push for a single positive in their life, almost to shake them. Oh, what I have learned since those days! I guess its experiential compassion. And, more, that, the pretence that life is always wonderful, is good, in balance. But an overdose of ‘wonderful’ is, frankly, both unreal and impossible and therefore not to be believed. However, I was brought up this way. You left your ‘stuff’ at home and, out there, you were upbeat and cheerful. There was a dichotomy in that, nonetheless because once back home the lode re-landed with a big heavy thump and nobody, including me had addressed the ‘stuff’ or even knew how to. I heard it chortle like a goblin as it held me in stasis, thrilling with its power and control. For years I avoided asking the How Are You question, or asking it whilst in full flight, not waiting for the answer, afeared that involving meant solving. Not now. Now I know what it is like to feel lonely, lost and scared, my ‘stuff’ all consuming, the goblin growing into a giant. Perhaps that is where they were, those ones I hurtled past in my busy and productive life, so called. Perhaps, had I stopped to ask, to listen, to lay a hand on another’s, to say I’m here, I might have made a difference to them. Although I could never sort their stuff, not even my own, that act of friendship just might have lifted them a little at a pivotal moment in their lives whilst taking nothing away from my own. In fact, it might have shifted my perception and that, I have learned, is always a good thing. A self-centred life is all very well, but nobody learns a thing from such a life, including the person living it.

I am just returned from a visit to the cancer centre in Glasgow. The hotel is near the clinic, minutes away in fact. I found Google maps and did the whole thing of current location and destination. But, then, I couldn’t work out how to hold my phone. This way takes me left, that way, right. I could wander for days if I don’t get this right. Here comes someone, airpods in, moving purposefully. We make eye contact. Can you help me please, I ask, with a smile. I get one back and I can feel the warmth of it. He stops. Sure, he says. He must be all of 25, and in a hurry. Yet still, he is kind. I may have electric blue hair, but he will have clocked the wrinkles. I’m heading for the cancer clinic, I say, oncology department. He melts. You say cancer and everyone melts, as I do. I think it is up here…..I wave my arm across most of Glasgow. He grins. Yes, but bring that arm in. It is just above us, up that wee hill, just a couple of minutes. That’s the main entrance. I thank him and we share an eye smile. He could be my son and he is kind and he stopped for me. Braced and re-energised, I march up said hill and down again, a little, down toward the entrance, where everyone looks down. Of course they do. Whether going in or coming out, there is a cancer in there somewhere.

Through the doors and I am assailed with signs, people moving by, more people than I see in a week on the island. Nothing fits with my instructions. I swing round and back again, looking daft. Can I help you? asks a woman with a badge. Oh, yes please, I am here for a CT scan. Radiography, she says, and points to the big sign I obviously missed. I march on, more corridors, more possible rights and lefts. I ignore them all, arriving at a reception desk where I am greeted with a big smile and a welcome, as if I was the DJ for their party. It chuckles me and I love it. I give my details and am guided to take a seat, which I take amongst others who look up through sad eyes and down again. I am here with cancer. They have cancer. We are all scared.

I politely stick my butt in a chair and settle beneath the ghastly tube lighting. We are slightly off from the main drag, one that hums with passing nurses, technicians, equipment, patients in wheelchairs, patients in rolling beds. We all watch. We all thank our lucky stars, for now. After fifteen minutes of a silence that begs, longs to evolve into chat, I know it is I who will do this. I am the DJ. How can I begin, I wonder. It thinks me, a lot, and then I find something. Does anyone know if it’s ok to keep a mobile on? (I know the answer, but that’s not. the point). Oh, you can connect, a woman says, she, with her husband in a wheelchair, You just look on the wall, there’s the wifi and the password. I thank her and rise, crossing the divide. I am now respectfully between her and another man with a stick. I smile at both, casting a rainbow. I sign in, not that I give a damn about wifi right now, and see my Poppy dog as my screensaver. I pivot to the woman, show her. Oh, she says, Oh, and asks me to show her husband, which I do. He tells me their border terrier died 12 weeks ago and they are both lost without him. I say how sorry I am and that my own wee girl is also dead, not so long ago. I ask questions about their dog, how they feel, and warmth rises. Then I go back to my seat and ask the young woman beside me if she has a dog. She has, she had, she also mourns her wee yorkie, is completely lost without her. We all talk dog for a while, and if I look, I can see the connections multiply across the thoroughly scrubbed floor of a cancer waiting room. It’s like theNorthern Lights and as beautiful. The last man in, the one with the stick is yet to be drawn in. So, I say, do you have a dog? He beams. I do, a German Shepherd. A beautiful girl. Tell me about her, I say, leaning forward, and he does and every single one of us is thoroughly engaged.

And, despite what any of us are going through or facing, I could see tiredness lift into a sparkle.

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Island Blog – Blue Tit and Game On

I drive the wee dog to Heather, for a groom. I encourage her to remain on her soft mat in the passenger footwell, the dog, not Heather, a new thing for her since the old man died. He had her on his knee, on the back shelf or jumping from front to back and all before we’d got through the village. Sent me crazy. I didn’t know, half the time, if I was changing gear on the car or the dog. But no amount of words altered his mind. His way was THE way and if I had a problem with it, well, tough shit. They say you can’t teach an old dog new tricks, but you can and I did. She trusts me and sits quite joco on the mat, trembling like a leaf for a few hundred yards and then lying down for the journey. Heather is wonderful with her, patient and professional in her dog grooming anti-hair pinafore. I leave to visit a dear friend for coffee and a catchup. She will ask about my situation, the whole hoo-ha since June 27th, a hoo-ha that tried to get me, and failed. We talk about life, about the island, about our visitors, about adventures, about addictions and choices and being alone without ever being asked if we’re okay with the whole ‘alone’ thing. She, like me, is a widow. I think ‘weeds’. What are widow’s weeds anyway? Her man fell off a mountain, too young, too sudden. Mine took years to dwindle away, but we have the aloneness in common. She is feisty and fun, bright and lively, intelligent and wise. Perhaps I am too.

All too soon it is time for me to collect my manicured dog. Cathy and I agree to meet again, for lunch somewhere, for longer. We never naturally get to the end of our flyabout conversations, those that dart from people to places, through memories and learnings, into new understandings and a new acceptance, the acceptance of being alone and then, from that point, of finding the feet to walk it into a new sassy light. The weather is balmy, unusual for this time of year on the island. The wind is from the Serengeti, I swear it, and a stout walk feels like a bad idea, but a walk is needed. I watch bout 20 snow geese fly up the sea-loch, and marvel at their beauty. Soon the Tundra, or Trumpeter, or Bewick swans will fly in from the arctic on their way south in search of food. I hope I am watching when they come by, to hear the melody of their wingflight, to hear their soft murmurings of encouragement to each other. In the starry starry nights, in the absolute darkness of the island darkness, their sound wakes me, no matter its softness. Flying way up into the ice skyfields , I cannot see them, but I can hear and I can wish them safe passage. I am connected to the creatures of flight, know their sounds, hear them like music, like a call to find my own wings, my own feathers.

Flight. Feathers. Connection. It thinks me, and it may sound daft, for I am utterly as glued to the ground as you are, but I have an integral belief in connection, to others and to otherness. Laughed at as a child for this ‘knowing’, I am freed of that now, mostly because, my dear, I don’t give a damn what anyone else thinks of me and my connection to otherness. In this time of waiting, for a decision on surgery, for the next tests next week, for the wotwot to come, I think of flight. All my many tattoos show flight. Dragonflies, musical notes, a feather, a butterfly, pegasus. Then, thanks to my son, I consider breast art after cancer. The pictures I google are many. It is, it seems, an art, and I like that. To lose a breast, or even to be altered by a lumpectomy can be a shocking shock. I will know one day for myself. To look the same as before, tempting, essential, perhaps for some, but not for me. I have had two breasts for 70 years, albeit the pair of them a tad wonkychops, one bigger than the other, but I had them and I am not a young woman any more. Had this happened when I was 30 or 40, well, I might have felt differently. I may still retain these breasts, but they may be even more wonkychops than before. For now, this is a mystery. However, and there is always one of those, I am planning a tattoo.

Robin Redbreast? I suggest to my African son. He nods, waggles his head. Better, he says, Blue Tit.

Game on.

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Island Blog – Cancer and Wotwot

Well, well, and what a time of it! I am having my time of it, whilst many others are doing the whole time of it having thing in their own homes, around, hopefully, their own people. My people left this morning (just the one son, so, okay, person) who brought me home from pavements and noise and a couple of hospital appointments in his Lotus, a classic, very small, like a dot on any highway, but fast and safe. Apparently. I was lying down, as, to my alarm, was he. Mostly I watched sky because conversation was tricky. There was a deal of shout and many ‘whats?’ But he got me home. The peace that came as we coasted into the ferry queue was almost an embarrassment.

So, home again to the wee dog, beautifully cared for, and indulged and played with and walked and wotwot by my lovely friend, and the joy rises like a warm fire on a winter’s night. The smile of it takes me upstairs to, finally, unpack my few bits of frock and underpinnings, to a shower, to the familiar. The sounds of gulls heckling a sea-eagle, the cornflowers rising like hope outside the window, the grass green and ebullient; the view across the sea-loch. Warmth beneath my feet, food in the fridge, clean sheets, a new beginning, for me. For my son too, I guess. For all my children too. Cancer is a cut in a life, a shock with ripples, like an ice cream, or a cocktail, and it is both, or can be.

Since I heard I had cancer, I have heard many stories. It seems to me that nobody talks about it in the street. It wonders me. Is illness, such as this, embarrassing, or shameful? Or, is it that we, (god bless the british) never want to inconvenience anyone, say anything that might make them feel awkward on a Monday pavement outside of Aldi? I completely get that some people don’t want anyone to know because they want to work it themselves and just telling anyone means they are obliged to keep the information coming. I respect that. But, and but again, I feel a challenge coming at me. Not to those aforesaid. No. But to those who want to say how they feel about losing a part of them they depended on for years, and, more, that part that didn’t necessarily give the heads up on ‘Something Wrong Here’. Such a shock. And that shock has outwaves, biwaves, tsunamiwaves. These can shock on for days, months, years. And the Cancer One knows this. No matter how she or he tidies it all away, how serious the (lost the word) thing is, it is an impact, infecto of dreams, a stealer of thoughts, sleep, decisions, movement through any day.

I await the results of my MRI scan, but spoke with my surgeon yesterday. He says, it looks good, just a lumpectomy. A few more checks, an ultrasound, then it is done.

I’ll go with that.

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Island Blog – I’m In Charge

I light myself a candle. Today was a waiting day, one that wakes me with an inner fog. Thoughts rise but fall again before I can set them in order, unlike other days when I am the one in charge. Even in a voluminous nightie, I am in charge. Even before my teeth are brushed and my dragon breath is extinguished, I am in charge. You stand here. I’ll need to think more on you. As for you, thanks but no thanks, not today. And you…..well I have no idea where you came from, perhaps a deep bog, a sinking, stinking one. Begone! However, this morning’s thoughts just swirled like whispers around me, uncatchable, turning to air whenever I reached out for a grab. The ones I haven’t mentioned? Throttled at source. I could tell, just by their colour and smell that they would serve me no purpose.

Waiting is tough. Waiting for a bus in the rain is tough. Waiting for a baby to emerge through the intense agony is tough. But this waiting, this cancer waiting, is definitely up there with the best/worst waiting thingies. I’m not surprised my thoughts have trouble thinking me straight. I am all wonky lines and inner wobbles. Even my walk down the stairs is old-lady cautious, as if my feet might miss a step regardless of all this foot attention I’m giving them. I even count the steps for goodness sake, as if, in forgetting one, I might not arrive in the same house I left on the landing. I’m not hungry, not anything much, until, that is, I hear the chatter of little girls. It is then that I recall myself, remember who I am. I may be waiting but I can do something with it, fill it, distract myself from it, begin to see through the fog of it.

I check my phone every 30 minutes. 15, actually. Just in case the consultant or nurse has called with an Oops we made a mistake you don’t have cancer after all. I read until my eyeballs threaten to abandon ship and my head can no longer sort out the protagonists of any one of the stories, merging them together until the mesolithic Scots tumble with the Harare prisoners on death row. Not a movie I’d recommend. But that doesn’t matter, the tumble of characters, because to read is to escape and I can think of less healthy ways to do that.

We, those of us not attending our first day back at school in smart green sweatshirts and black breeks, go out to visit a farm shop a short distance away. There’s a wonderful cheese counter and we ogle the selection from Stinky Blue to Not Stinky Goat and everything in between. We sit for a panini lunch whilst Little Boots, the smallest girl not yet at school, enjoys a multi-coloured lolly, on my knee, plus multicoloured drips and multicoloured chatter. I laugh. I now look like an abstract painting. This and other little distractions distract so cleverly. It thinks me, now that my head is fog-less.

I light myself, that’s what I do, that’s what I can do, all I can do whilst I am waiting. It’s me taking charge even though I am not in charge of anything outside of me. But I am in charge of that bit, and that ‘bit’ is me, the Bit Part in a huge production called Breast Cancer. I read that actors in such huge productions spend most of their time inside a trailer, waiting to be called. Waiting and waiting and who would know it once the finished film is on screen for our pleasure? It looks complete, everyone busy all the time, as if that is how it was put together. But it wasn’t like that at all. Nor is this. I will, I know, look back one day and forget the pain of waiting, the length, breadth and depth of it. It will just be mentioned in a sentence. I had to wait. That’s all. But now look at me, all bright and cancer free and filled with my usual overload of beans! And not waiting any more, not for nobody nor nothing.

I watch the candle flicker, the flame waver and wend in the airflow I create just tapping out words. I see the glow of it inside the glass jar, the shine of the melted wax, and it smiles me. This candle may snuff out, but so will the waiting, and the treatment and the anxiety and the fear and the pain. I may be a bit wonky chops when all is said and done, but I will still be in charge, of myself anyway, and that task is not for the faint-hearted, I can tell you.

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Island Blog – Walking On

I was supposed to have my shingles jag today, but the nurse said I was too run down. I know it. So tired all the time. Part recovery from being nearly dead and the long climb back up from the mud and sludge of that Old Gripper, part fear of what may lie ahead. This is a time I could wish, as I did way back in school, for a less brilliant and inventive imagination. ‘Judith (cringe) has too much imagination’. Quote from a school report. And it wasn’t just once. It seemed to me that an imagination was something to be deeply ashamed of, something, perhaps, that might require surgery or therapy long term, at the very least. It got me into no end of scrapes, and, I might add, out of them too. An imagination is, by its very nature, flexi-intelligent, dynamic, able to work both ways on most things and in most situations, and two faced. There is the light side, the fun side and there is the dark side, the backside, the backslide. However, I am in control, mostly, of this imagination of mine, even though right now it is showing way too much sass. I suspect this is because it is also an opportunist and in the face of my looking smaller, aka, run down, it is rising above it’s pay grade. Well Hoo and Ha to that! We need to work together, I tell it, not against each other. When you show me dark, let the fear of wotwot court a dalliance with said dark, I go off you. We have worked together for decades, you and I, much as in a long term and bumpy marriage, agreed, but we did find a synergy of sorts and it benefitted us both. I got to keep the mischief and the inventive thinking and you got to keep me. Actually, I think you owe me. Without me, you would be foof in the wind.

Although I didn’t have the jag, I had the nurse, the one who flagged up a few weeks ago that I was looking like the nearly dead. She told the doctor and I had the chance to thank her, the nurse. She, Cara, has bright eyes, a beautiful and unlined face and looks about 16. She isn’t. Then I got to see the doctor to thank her for her quick and intelligent decision to send me off to hospital. She, Dr Jackie, is a lovely woman. I thanked her and we hugged. The new doctors on the island, this end of it, are a warm and welcoming couple and we are so very lucky to have them now. Actually the whole staff are so friendly, efficient and intelligent, I wonder how we islanders came to be that lucky. I am only thankful.

I came home with the damn imagination. I need distractions. Radio Four Extra is a wonderful discovery. I am knitting something. For now it is a long line of knit-ness. It entertains my fingers which is enough in small doses. I walk the wee dog but oh my, how wearily i walk, how weak I feel! I can do little and often. It’s the same with gardening jobs. A wee bit of weeding, a little pruning of the currant bush which isn’t/ wasn’t a bush but more a blanking out of the sky. It looks a bit weedy now, but I encouraged it to stop whining and to get back its mojo for next Spring, as I intend to do. I gave it a backward glance, having hefted huge long branches into the neighbours garden (she won’t notice). Stop focussing on what’s gone, I said. Look at the opportunity. I swear she quipped ‘Right back at you, lady’. Maybe I imagined that.

I feed the birds. We have swarms of sparrows here, unlike many other places, Englandshire in particular, and I have masterminded my feeders beyond the dive of our prolific sparrowhawk population. There’s a fence in the way, three wheelies and a mini. It seems to work. I watch the tidal dance, listen to the gulls screeching at the sea-eagles and hear their yipping response. It floats across the sea-loch as something unseen yet believed. I know the sea-eagles are there. I cannot see them. That doesn’t mean they aren’t there. A lesson in that, for the learning.

I fanny about with what to take when I leave this beloved home on Monday and head into the unknown. A couple of frocks, a jumper, cardy, (tweezers this time), nighties, leggings, a jacket, my purse, phone, laptop, chargers, underpinnings. How long will I be away? Will the consultation lead straight into surgery, or will there be weeks of waiting? Will I come home or stay away with my very limited clothing options? What surgery do I face? Lumpectomy (day job) or a single or double mastectomy? I don’t know yet but my imagination is already having a field day, whatever that means. Because I am high risk, many in my family having had breast cancer and with my great grandmother coming from Orkney, I may opt for those breasts to go. They fed five children and not many can say that. I thank them. Sometimes I look at them, old now, paps really, and marvel at the work they have done, the lives they have sustained. I can let them go, if that is what I and the consultant decide. To think I may leave with breasts and return with none is quite a thought. Some might say, Don’t talk that one up! I ask Why Not? I am a realist, a woman of age, a strong and vital life force and honest and open to a fault. (why is is called a fault? Does it refer to a fault line or is it a somebody’s ‘fault’? It thinks me)

I will keep writing. I will keep blogging although my arms might feel a bit dodge for a while after surgery. But we are not at that point yet. This is just the beginning. Rather exciting when you look at it that way, don’t you think? A world I have never walked in before, a newbie, wide eyed, scared, yes, but walking on. Always walking on.