maggies centre

Before I left on my journey into the unknown, my head was a full chorus of discordant voices, a clamjamfry of chaos, each voice certain it was in the right place and in the right choir, which none of them were. Once I realised that I held the baton, I regained control, thanked them for turning up and sent the whole lot packing, sans pay. This confusion was birthed from my own fears, of cancer, of therapy, of travel, of the ferry sinking, the train crashing, or not running at all, of the Zap Centre not able to find my name, etc etc. I imagined the latter and agreed with myself that I would be anyone at all, just to get this treatment into my past.

As I moved into the freezing and draughty corridor pre boarding, an actual ferry sat docked and gape-moothed, swallowing cars and vans and bikes, I felt those think-eejits choking out last breaths. Funny that……once I get the hell on with something that affears me, my imagined horrors become as wisps of nothing. The ferry did not sink. The train left on time and arrived in the right station. The hotel was expecting me and my room was comfortable and safe. For five nights and days I moved with growing confidence, walking the short route for morning radio-zappery, and thence to the Maggie’s Centre where they know just how to welcome all of us cancer folk, and those connected, who want to talk or don’t want to talk, who want tea or coffee or just to wander alone.

The imagined fears think me. Echoes, they are, of old voices, the shoulds and coulds and musts and might-but-didn’ts; of failures perceived, in fact, of all that our spectacular minds can bring to bear, in order to pulp us down. I can summon up a massive storm just thinking about a short trip somewhere, and, I know that many laugh at that. Overthinking, too much imagination, catastrophising, I’ve heard it all, and used to define myself as ‘faulty’ from such opinions, but not now. Now I have learned that, for someone like me who sees these possible disasters, albeit ridiculous, is, in fact, a wise person. I still go, I still feel the fear, but I still step out. A lot of the fears, breathed out from lungs of brass, I flap away, but some I pay attention to and then prepare, because I damn well will not give in or up or over, never mind the oldness and aloneness of me. And if, and when, I hear the echoes awakening, the old fears, the invitation to say no to every single adventure, even the weeny ones, I rise. Every time I rise. I don’t say it’s a breeze because it isn’t. It’s a bloody effort even to admit I am thinking about this journey or that. But, I will not settle on the settle.

Naturally, like everyone else, I would like the echoes to go away for ever and ever, but they won’t. They are rooted in a very long past, parents, their parents, and their parents, crusty old judges, confined in the corsets of their times. They are in our blood, and they will rise every time we feel anxious about anything. We dont have to listen, well, we do, because pushing them away only lasts a wee while. We need to say, hallo, I hear you, but you are not helpful to me so please go away. It works. Then you, or I, pull up our boots, feel shit scared, and get out there, no matter what comes next.

I’m hearing sounds unfamiliar to me. Above my hotel lurks a crow with a crooked voice. Sounds to me as if he has wrongly wired vocal chords. I watch him make these strange calls and when a mate joins him on the CCTV camera, it thinks me. I might have, and did, at first, consider him a case for sympathy. With that voice, will he ever attract a mate? The rasp is more ‘Go Away’ than ‘Come Hither’ after all, but how wrong was my judgement on the matter!

Inside the warm and welcoming Maggie’s centre, I watch people. Over there is a man who has throat cancer, his voice, produced via a box implant is a hoarse and raspy whisper, his own voice gone forever. Was he a tenor or a baritone, loud-spoken or honey gentle or a bit of both, depending on circumstances? Did he shout, once, as he will no more, or sing, or summon the troops into battle? I will never know. Then there is the guy who has terminal liver cancer and is just out of hospital. Despite this, he is full of jokes and twinkle, talking to everyone, ready, always ready to laugh.

I watch newbies wander in, eyes darting left and right, looking for a safe landing. I hear the welcomes from the staff, the ‘Come Hither’ in their warm and compassionate eyes. Gradually, the newbie’s coat comes off, she is guided to the kettle, the coffee and the tea, the bowls of fruit, chocolates, biscuits and cake. We sit in sunshine behind the glass walls, talking, wishing each other all the hopes for full recovery. I am aware that some cannot hope for that, but, in talking to them, laughing with them, I can see the cancer slide away from their eyes, just for a moment, an hour, a day. Back home, back into the relentless barrage of tests and therapies, reality may well re-invade, and hope can be a heavy weight to lift up each day, for some. I can afford to play the fool, I am well and ridiculous and always full of mischief. (Mischief…….interesting word to pull apart, methinks.) But, even though I am so lucky, so without pain or a possibly hopeless road ahead, I am accepted because I have cancer. We are a new family and there is much to learn about each other, many random conversations to have, many opportunities within which to uplift each other. If I lived here, I would definitely volunteer in this centre. I would meet and greet, lift and encourage, play the daft eejit, sympathise and sit beside another broken bodied soul. And it isn’t just the one with cancer who needs such. There are partners, children, siblings and friends, all in a permanent state of shock, all battling with an overactive imagination, or with a sharp and agonising truth.

I am learning, as we all must, not to hide our diagnoses nor our feelings around them, but to stand up and out, as survivors, however long that survival might prove to be. To find each other, people we would probably never ever meet, had cancer not found a landing within our trusting bodies, a chink, a broken paving stone, a pothole, an unintentional welcome to a predator. I hear, and see, multi cultures in here. I see all shapes, all sizes, listen to all accents, and all of them are beautiful to me now, in a way they never were before. How easy it is, especially in a city, to march past all of this beauty without even a ‘Hi’. I’ve been ‘Hi-ing’ my walk to my radiotherapy appointment each morning, sometimes to the astonishment of the person coming towards me, so used are they to their own agenda and a perceived unfriendliness of everyone they don’t already know. Mostly, however, I receive a smile and a ‘hi’ back and that thinks me too. We can become so very lonely as we live out our lives, not because we want to, but perhaps through fear, or the ordinary process of keeping our broken parts invisible to all. We cover them in clothes and make-up. We keep our arms close to our bodies, our voices low. But what we all long for, in truth, is connection. We just don’t feel confident enough to reach out for it, to face the risk of rejection, for fear of looking foolish. But if we could just, like the crooked-voiced crow, call out anyway, smile to each other, say ‘Hi’ to a line of folk in a bus stop, a queue for radiotherapy, anywhere, everywhere, I know that loneliness would lift, just a little, and, who knows, it could lead to new friendships, as it has for me.

For anyone interested in learning more about Maggie’s Centres, I am visiting the one in Glasgow, on the Gartnavel Campus, opposite the Beatson Cancer Centre, but these havens of support are everywhere.

Just go to http://www.maggies.org