I light myself a candle. Today was a waiting day, one that wakes me with an inner fog. Thoughts rise but fall again before I can set them in order, unlike other days when I am the one in charge. Even in a voluminous nightie, I am in charge. Even before my teeth are brushed and my dragon breath is extinguished, I am in charge. You stand here. I’ll need to think more on you. As for you, thanks but no thanks, not today. And you…..well I have no idea where you came from, perhaps a deep bog, a sinking, stinking one. Begone! However, this morning’s thoughts just swirled like whispers around me, uncatchable, turning to air whenever I reached out for a grab. The ones I haven’t mentioned? Throttled at source. I could tell, just by their colour and smell that they would serve me no purpose.
Waiting is tough. Waiting for a bus in the rain is tough. Waiting for a baby to emerge through the intense agony is tough. But this waiting, this cancer waiting, is definitely up there with the best/worst waiting thingies. I’m not surprised my thoughts have trouble thinking me straight. I am all wonky lines and inner wobbles. Even my walk down the stairs is old-lady cautious, as if my feet might miss a step regardless of all this foot attention I’m giving them. I even count the steps for goodness sake, as if, in forgetting one, I might not arrive in the same house I left on the landing. I’m not hungry, not anything much, until, that is, I hear the chatter of little girls. It is then that I recall myself, remember who I am. I may be waiting but I can do something with it, fill it, distract myself from it, begin to see through the fog of it.
I check my phone every 30 minutes. 15, actually. Just in case the consultant or nurse has called with an Oops we made a mistake you don’t have cancer after all. I read until my eyeballs threaten to abandon ship and my head can no longer sort out the protagonists of any one of the stories, merging them together until the mesolithic Scots tumble with the Harare prisoners on death row. Not a movie I’d recommend. But that doesn’t matter, the tumble of characters, because to read is to escape and I can think of less healthy ways to do that.
We, those of us not attending our first day back at school in smart green sweatshirts and black breeks, go out to visit a farm shop a short distance away. There’s a wonderful cheese counter and we ogle the selection from Stinky Blue to Not Stinky Goat and everything in between. We sit for a panini lunch whilst Little Boots, the smallest girl not yet at school, enjoys a multi-coloured lolly, on my knee, plus multicoloured drips and multicoloured chatter. I laugh. I now look like an abstract painting. This and other little distractions distract so cleverly. It thinks me, now that my head is fog-less.
I light myself, that’s what I do, that’s what I can do, all I can do whilst I am waiting. It’s me taking charge even though I am not in charge of anything outside of me. But I am in charge of that bit, and that ‘bit’ is me, the Bit Part in a huge production called Breast Cancer. I read that actors in such huge productions spend most of their time inside a trailer, waiting to be called. Waiting and waiting and who would know it once the finished film is on screen for our pleasure? It looks complete, everyone busy all the time, as if that is how it was put together. But it wasn’t like that at all. Nor is this. I will, I know, look back one day and forget the pain of waiting, the length, breadth and depth of it. It will just be mentioned in a sentence. I had to wait. That’s all. But now look at me, all bright and cancer free and filled with my usual overload of beans! And not waiting any more, not for nobody nor nothing.
I watch the candle flicker, the flame waver and wend in the airflow I create just tapping out words. I see the glow of it inside the glass jar, the shine of the melted wax, and it smiles me. This candle may snuff out, but so will the waiting, and the treatment and the anxiety and the fear and the pain. I may be a bit wonky chops when all is said and done, but I will still be in charge, of myself anyway, and that task is not for the faint-hearted, I can tell you.