As the temperature drops here, I consider my packing for 35 degrees within a few days.  It is immensely hard to think ‘frocks and sandals’ whilst similarly pulling on a second cosy jumper. My swimming costumes was understandably quite forgot till just this morning when it yelled at me from deep inside my knicker drawer.  Sunglasses, malaria tablets, small but powerful binoculars, flimsy this and even more flimsy that.  Don’t forget the shoes with covered toes for safaris into the bush.  I never did ask why I needed them but I am guessing it’s to do with snakes and spiders, both at ground level and horribly silent in their approach.  I remember a safari years ago when I watched a big web hurtle towards me with no ducking options as the jeep bounced and jiggled through a dried up river bed.  As it wrapped itself around my face I did wonder if I would make it home in one piece.  I obviously did.

Another time, in among a different set of wildlife, with a big ass river flowing through it, I asked the very tall guide where his rifle was.  He shook his head.  No rifle.  I had been told he was the very best guide in the Kruger area but his ‘no rifle’ thing still bothered me.  When we stopped beside said fast flowing river, he told us to stay put.  No arguments with that!  He got out and looked around with his shaven black head all full of experience and wisdom and knowledge, and in his hand he held a spear.  Lordy, are we in the Dark Ages here?  But he told me his spear was faster than a rifle bullet and I believed him.  He had such a presence, such calm, such strength.  When we did clamber out onto the dried up dust bowl of an earth, he led us to the river bank.  Hippos.  The most lethal of all.  You don’t mess with hippos and they are surprisingly quick on their feet if they don’t like the look of you.  We think they just yawn a lot and then fix on tutus and dance in cartoons, but don’t fall for that one.

The skill these guides have is way beyond the most of us.  I’ve met one who lost an arm to a lion.  He could still boogie with the rest of us.  But, my safely organised ventures into the wild animal kingdom will be, well, safely organised, and on a daily basis I will wander around the camp, read, write, sew and laugh with the black women, who always laugh, by the way, and they have not much to laugh about by western standards.  Their attitude to life is one of thankfulness and of anticipation and of hope and it makes us over here look like right twits with all our ‘things’ and all our ‘worries’.  Finding a snake in a handbag is just what happens.  Monkeys wrecking the kitchen are just monkeys wrecking the kitchen and they are swiftly dispatched with a menacing cucumber or a broom and a great deal of shouting.  Then, they laugh again.

And then, they begin to sing.

I remember going into town to stock up on supplies for the kitchen.  We had our list and our list included 4 barrels of water.  I’m talking BARRELS.  We loaded up with crates of fresh avocados, greens, salads, cucumbers (for the monkeys), a whole box of beef and chicken and pork and something I didn’t recognise at all, plus the water.  When we arrived back and began to unload, the laughing black women came out to help.  ‘I’ll take one end of this barrel’ I said to one of them.  ‘No, Ma, she said, and hoisted one onto each shoulder as if they were bags of cotton wool.  My mouth took a while to shut.

Over the past day or two I have fretted with lists and with tasks to make everything just so for my time of absence.  I have left phone numbers for the carers, the nurses, the doctor, the neighbours, the stair lift fitters and the lady who sorts personal alarms.  My head is mince.  But, when I consider how the other half lives and the way they live it, I want to learn from them.  Everything is fixable.  And, if it isn’t, then it isn’t.

There is, however, a daunting loneliness in this journey.  Before, there were two of us to discuss, plan, work things through.  Now, it is just me, and will always be ‘just me.’ If I hover over that feeling, I confound myself.  Sitting here, looking at the jobs still to be done, jobs that won’t be done when Mrs Perfect is thousands of miles away, jobs that matter not one jot in the grand scheme of things, I find a smile. Not least as I consider these African women who have walked and hitched across miles of dangerous land to find work.

Everything, you big twit, will be ok.  And if it isn’t, it isn’t.

I am ready, and then some, for those big black women to boogie-hug me and to welcome back Mama Bear, as I will welcome them, back into my arms.

It’s what we all want.  Peace around us and within us, and it is the most elusive gift of all, if we’re honest.  I may run a tight ship, endeavour to maintain a tidy home, make it warm and cosy, bright and welcoming, but it doesn’t bring me lasting peace, for, one day, I will be overwhelmed with all this tidying and welcoming stuff and the effort will just feel like work.

I can walk in the wild and breathe in the soft rain (ever near);  I can learn each bird sound, recognise each species, learn which tree is which and why it grows well here, but not over there.  I can see new deer tracks, find otter spore, listen to the song of each wind and really engage with each seasonal change.  I can read well-written books, listen to glorious music and walk myself into the warp and weft of a symphony, then go deeper into it to hear the flow of each individual instrument. I can boogie around the kitchen just because I feel like it.  I can write an encouraging letter, send a kindly message to someone who needs to hear one.  I can cook something delicious and share it.  But all these bring to me is a short term peace, nothing lasting, for it would be inhuman of me to manage all of the above every single day.

To learn to live inside this world without expecting anything from it is the key.  So where is this lasting Peace?  Not in the world, not on TV, not in the papers or on the news;  not in this life, my life, and not in anyone else’s either, except in part, when things trundle along like Thomas the Tank Engine beneath a sunny sky.  I have those times too and I am very thankful for them because they tell me all is well in my world.  Okay, that was Monday.  But now, it’s Tuesday and everything feels like double pants.  It’s raining, which didn’t bother me at all on Monday, but which has now turned into a personal attack.  What happened?  Was it me, something I’d done, or not done?  If I believe, as many do, that something, fate, karma, bad luck, controls my life, that I obviously didn’t rack up enough gold stars yesterday, then what on earth is life about?  Am I, as I was in the schoolroom, doomed to a gold star hamster wheel life for however long I get to live it?   I thought we were supposed to love our lives.  Ask anyone that question and see what they say.  ‘Do you love your life?’

Hmmm, well I’ll have to think about that.  At times, I guess……

In other words, No.

So, I must look higher.  Way beyond my grasp there is a force for good.  I can access it, but only if I acknowledge it.  If I can keep my feet on this ground, on my ground, the ground allotted to my walk for life, and my head in the clouds, then I will find Peace.

Someone asked me, once, knowing I am a believer, why I never mentioned God in my blogs.  It was a good and fair question and it thinked me a lot and for a long time.  Am I embarrassed to write his/her name?  Am I #notquitesure of the power of a loving deity? I don’t have answers to either of those but I do know that it is super easy to be pigeon-holed for believing in anything bigger than that which a human can achieve all on his own.

It is more than enough for me to hold my beliefs quietly to myself, for I am no evangelist, and would run a mile if I thought one was heading for me.  I just know when I am having a Thomas the Tank Engine day, beneath a sunny sky, that that is all it is.  Just one day.  On other days, cold days, unhappy days, it isn’t to do with gold stars, or me.  It’s just another day in an inconsistent life.  Just like everyone else’s. And, on those days, I can still believe that my inconsistent life is in the hands of a higher power and, through that belief, gain Peace regardless of the inner or outer storms.

And thank God for that.

In just over a week, I fly to Africa, heading for the bush.  Not for the fainthearted, the whole bush thing.  Lions, leopards (outside the door) snakes, spiders, bad tempered buffalo and rhinos, sweet long=lashed giraffes and oh, oh, elephants, also with long lashes but not always sweet tempered.  However, everyone with a modicum of sense is absolutely polite-without-question around elephants and, as I will so not be on foot when we meet, but in a Buckie, with a guide, I am confident there will no opportunity for disrespect. One flap of those ears, one growl and we are solid gone.

The forward planning, prior to said trip to Africa, for one whole glorious month, is most definitely a fandango.  I’ve checked the gas supply, the oil supply, the wood for the fire.  I’ve emptied the inside paper bin into the outside paper bin a few times and yet, I am here for another ten days.  I have stocked up with tissues, kitchen roll, loo paper, washed the cloths, bought in extra bin liners, cotton wool, washing powder.  If I were to leave right now, this minute, all would be perfect, but how much of anything is a muchness in my absence?

I write and write and add to the list of NOTES FOR THE CARERS.  It doesn’t come easy because I do it all, and without listing any of it.  How to explain, for example, the workings of our old, but reliable, built in oven and grill, with all the relevant stop points eradicated over time.  I just know that I need to flick to 6 o’clock to get the lower oven working and the grill settings…….well, they went long ago, but I just know!  All those little tasks that make up my day, any day in the life of a housekeeper, dog feeder and walker, washerwoman, floor sweeper, bed changer, encourager and sorter are legion and extremely hard to list.  I have to notice, stop, write down, and, as I do, I consider what a marvel a woman is.  I always knew it, but somehow this noticing and writing down thingy elevates womanhood to angel level.  The carers are my support team.  They are also women who run, not only their own domestic lives but mine, in part, and that is the part I need to translate for them, as all homes and situations have their own quirks.

Teaching is a gift.  There used to be a ridiculous saying, ‘if you cant do, then teach’.  Well what nonsense!  If you can’t do, you so can’t teach because to be a good teacher is most definitely because you can do what you plan to teach.  It isn’t about book learning but about experiential learning and that knowing is knowing indeed.  When my kids met a good teacher in their lives, this teacher changed everything for them.  The rest, well, say no more.  To interpret things we know into a language that others can accept and understand is skilled work.  As my list gets longer and l o n g e r, I wonder if it makes sense at all.  And, in my need to over-say, I forget they all have a deal of common sense and will work everything out for the best.  Bullet points are enough, even if my pen hovers over the paper, as I fight the urge to detail every tiny thing, a result that would cause their eyes to roll, for sure.

So, it comes down to letting go.  I’m not good at that and how would I be?  I’ve been the main carer for many years now and the one who notices, thinks things through, solves all problems, either via email, or phone, or with my own abilities to fix broken parts.  Letting go sounds lovely and feels like pants.  But, soon enough, it will be me, heading off with E ticket and my kit, and there will be no popping back to check that everything is done the way I would have it done.

In the days prior to going anywhere, even for two nights, the to-do list frazzles me, leaves me a bit shaky and brim full of doubt.  I know that anything forgotten will be my fault, even if I also know that’s a load of unfair dinkum and not the truth at all.  I have often wished that I cared less, like some other sensible women who have no problem in letting go, but this is not me.  I even fretted over the kid’s packed lunches, so there is no hope for me now.  But, and but again, I can learn new ropes, even now, even as an oap.  Or so I tell myself.  And, just think, you crazy old coot, you will be thousands of miles away in the sunshine soon enough.

So, I made a rag doll.  I had always wanted a rag doll and never did have one that I can remember.  She is badly sewn together, filled with old bandages instead of the right stuffing, and dressed in what could never be called an outfit.  She is not colour, nor pattern, co-ordinated and her lippy is smudged.  She is a fandango.  But she is smiling and I love her.  I had to split a cork to fix behind her floppy neck and one arm is longer than the other.  I followed no pattern, but guessed my way through the making of her which is evident on closer inspection.  She is sitting in front me right now.  My Tatty.  And smiling still.  She reminds me of myself a while back, sassy and smiling and multi-coloured, before caring took its toll, which it does, and let it be said, and heard.  Of course I am changed.  Who wouldn’t be?  But, despite a retrograde flow, not just for me, but for everyone involved, there are times of laughter and fun and it is these times that hold the line and keep it strong.  I can see my children holding it too.  When one of us falters, others tighten their grip.

And, for now, Tatty Fandango smiles on.

,

Last night the stags kept me awake.  I can’t see them, way over there across the sea-loch in the darkness, but I can take myself there in my mind.  There’s an old boy, calling through ragged throat, his call raspy as sandpaper, his message clear.  This is my territory, my harem, my life on the line!  Defiance is in his tone and many years of experience and fight in his urgent delivery.  The night is as startled as I am when he lifts his head and shatters the dark.  She stops, holds till he is quiet, and moves on.  I wait for the response and here it comes – a youngster, brimming with fire and testosterone and moving in.

Yesterday I heard shots, rifle shots, big rifle shots.  I wondered, then, if tonight will come without the old stag; if his days are done, if he is bloodied and broken in a way he never saw coming.  I tell myself this way might be kinder but it still catches my breath, the thought of that sudden death.  Somehow the last fight seems more natural, although it surely would take a whole lot longer to come to a conclusion.  And the wounded, limping away of it makes me want to run up the hill with a bandage.

As I almost drifted off to sleep, I heard swans.  Now, swans at night will always bring me to my window in the vain hope that there will be a full moon, clear skies and a grand sighting of those almost silent wings of grace.  No such luck, but I still stood and watched the night and listened to that soft and gentle piping sound until it faded into someone else’s sky.  I wondered how they fly at night.  I wondered where they go and how long it will take.  I wondered many things but one thing I knew.  They communicate in ways we could all learn by and nobody ever gets left behind.  Like geese, if the lead swan tires, he will tell them and another from further back will take his place.  I have watched it happen and it smiled me for the rest of the day, that team spirit, that respect for each individual, that lack of judgement.

There are days when I wake barely able to say good morning.  There are days when I am filled with beans and good mornings.  Sometimes the weight of caring feels like a mountain on my back, my blood cooling fudge in my veins, and then there are times when I feel light as a kite with an equal sense of fun and laughter.  Some days the thought of what lies ahead, the washing and cleaning, the picking up of dropped things, the mopping of spills, or mud shuffled in twist my stomach into a reef knot.  Others, I sing my way through it all and feel no angst at all.  Cooking soft foods every single day can be a living nightmare or just cooking soft foods.  Encouraging a shower or a change of clothing can be just too much, or just too easy.  Reminding, repeating, reassuring is an irritating chore or a dance with compassion. And all of these states of mind are down to me.  I know this, but when the body is weary, so is the mind, as it appears they work together, like swans.  I can decide to choose my attitude but fail through lack of sleep.  And then guilt moves in.  I know nothing can be done to change things and that the only thing I can control is myself.  I know I need to keep myself healthy and exercised and fed well, but half the time, yes, half the time, I can’t be bothered.  That is when guilt trembles in the wings, glitter-eyed, rubbing her hands together in glee, for here it comes…….that sharp word, that unfair remark, that look, that sigh, that refusal to go here or collect that.  Now she is centre-stage and I am on my knees with remorse.

Accepting the pendulum swing of life as a carer is not easy.  I want to do this the right way, the perfect way, but there is no such thing as perfect, however much we may aspire to it.  Besides, ‘perfect’ is rigid, glossy, immovable, unbendable, finite.  Not human at all. The others in a similar role to mine tell me that I encourage them by writing my truth.  Although this will never be a private blog where all the sharps and all the messes are revealed in safety, I do believe that there is far too much whispering around dementia, too much hidden from a world that really ought to know, because dementia is racing into our lives at an alarming speed.

So I’m going to stand firm on my hillside, and roar my aging roar, whilst also flying with the swans and learning, on a daily basis, from both.

40 years ago, this very day, we moved from the flatlands to the island.  I can hardly believe I have been here most of my life, as have my children.  Arriving full of excitement and terror, with a large heavy horse, two dogs, two cats and two weans, and minus the lime spreader I had ditched about a mile from the farm, we turned into the village street.   I had never driven such a long distance before in the land rover, let alone towed anything at all.  The faith placed in me was, well, let’s just say, nothing short of ridiculous, and I knew it at the first layby.  Driving in tandem is all very well in theory, but keeping up becomes IT.  I found it very hard to focus on what I should have been focusing on, ie the road and the traffic, my neck stretched out like a goose, eyes peeled for the horsebox up ahead.

Since that day we have dug our roots and even those who no longer live here call it home.  The solitude and space, the big skies, the rain, sun and wind, all sing my song, or I sing theirs.  The rhythm of life is a slow and steady beat, a rolling in and out of the tides, the moon, the seasons.  I have little desire to visit the mainland, especially as it is now so easy to buy most things online, barring explosive materials or liquids, of which I have little need, even if it is mildly annoying not to be able to order a wee bottle of essential oil for my essentials.

We have lacked little and found everything we need.  I do remember the times of yearning amongst the children as they moved awkwardly into the teenage years, and had I been a teenager, I would have felt the same.  A dance in the village hall is so not the same as a rave.  But I guess they made their own raves for they all bounce like Tigger even now, now they have their own children, who also love an island visit.  There is something so wholesome in this island life, but don’t confuse wholesome with dull or boring.  The real islanders, those born here, their parents from here, have the most spontaneous and wicked sense of humour, an eye for the fun in pretty much everything, even the dullest of tasks.  I’ve had more fun here than I ever did in the flatlands, been laughed at and kidded on and hoodwinked; been the butt of all the anti English jokes, teased for being posh, and celebrated as a friend, and I have loved it.  How strange it is to up sticks and to move to a completely different world, and yet to find the cap fits as it did right from the start.  I had no prior experience of the West Coast or the folk who scatter themselves across the wild places, of village life, of community spirit, of real hard work, until I came here.

I wrote my book because there was, and still is, so much to say about island life.  It is not for the faint-hearted and that’s for sure.  It is inconvenient, demanding and wet.  Things don’t work, don’t arrive at all, don’t turn up on due dates, get rusty, rot, are mouse-damaged, break down, blow over or disappear completely in high winds, can’t sail, sink, fall over, lose their sump in a pothole deep enough for the vicar of Dibley and, yet, it has the heartbeat of home.  These things can go wrong in all lives, but, here, we can’t just replace the broken immediately.  We have to find a way around a whole load of problems and I am glad to have learned resourcefulness, something an easy life in a convenient place would never have taught me.  I have learned to be independent, inventive and accepting.  Oh it makes me swear when things go wrong, of course it does, but I have that inner core of can-do that only living here has taught me.

I don’t wish for another 40 years, for I would be over 100 and that doesn’t sound like much fun, but I am so thankful that, on that mad day in 1978 we decided to drive up to ‘look’ at a place for sale.  9 hours on the road, with two little ones in the back seat, and absolutely no idea that this whim would manifest itself into a shared life of fun and challenges I had never imagined existed, of learning and of learning some more; of spontaneous musical ceilidhs and of

no locked doors.  With not one jot of experience between us, no idea of how to run a hotel, a hill farm, a whale-watching business or a recording studio, we dived right in with childlike enthusiasm.  There were many pitfalls to come, many mistakes to make, many sadnesses to experience, but this is the truth of Life for anyone who has the courage to let go of what isn’t working and to take a huge risk.

I’m so glad we did.

Today it is not raining.  Yet.  We have enjoyed many days of heavy rain, enough to turn the seed in the bird feeders to a soggy mush, enough to soak dog walkers after a few steps forward, enough to flood the little roads around the village.  The river burst over the bridge and the school car park became a pond.  Luckily, for us, this island sloughs off water quicksharp and the ground can look like ground again in a mere day of dry.  Built on granite and super lumpy in parts, there are few of us living in a flood risk.  We just aren’t low enough for that.  What we face at times of big winds and stair rods of heavenly water is that the ferries don’t sail.  They sit fat and empty of life in their mainland dock.  We, they say, are going nowhere today.  Tough bananas if you don’t get your new sofa Missus, or your mail, or yourself to the dentist.

And so we remain at home, looking out at the blattered dahlias and the neighbour’s wheelie bin cavorting about the road in a macabre dance, spitting no end of interesting garbage into a field of startled sheep.  And we make soup.  That’s what we do, although I resisted the temptation, myself.  Soup is IT when things like ferries don’t sail and the weather takes control of our day.  I meet women, like me dressed up in crinkly damp jackets,  somewhere near the leeks and carrots and we just smile at each other.  Not one of is phased for long when we see the leek tray all but empty.  No matter, we say, I’ll just find an alternative.  And we do.

We need to find alternatives for our soups on regular occasions living on this island, and not just in the physical process of preparing a nourishing brew for lunch.  We must use our attitude to find alternatives in all areas of our lives.  And we are resourceful, rarely stultified, and I don’t think we even realise we are.  It’s only when speaking to a person who lives near all possible conveniences, with alternatives on tap, that we recognise our experiential brilliance.  Anyone who has faced Christmas Day in a power cut, cut just as the turkey was beginning to turn into dinner, knows what I mean.  Being without newspapers or milk or mail is not a national disaster.  There is always someone with milk enough to share and the mail will be just another bill, anyway.

I think what we depend on and learn to dance with is that we are a community, one that has known tragedy, loss, and deep potholes.  We may not love each other all of the time but we are never alone in trouble and the more widespread the trouble, the more we rally.  Those whose lives are superbly organised are easily confounded because Life, God bless her, is a proper little madam at times, and she can pull the carpet out from underfoot at a whim.  Prepared for such is not being fatalistic, but sensible.  Being aware that change boogies around our edges on a daily basis, change that can so easily stick out a tripping foot and bring us down, is showing respect for the forces of nature, of Life herself. It isn’t a gloomy attitude, for which there is no excuse, not ever.  If we can learn to live in the moment we are in, right now, and then in the next, when it comes, light on our mental feet and solution-oriented, then we have learned the secret of Life.  Many of us share the pearls of such wisdoms, quote them even, word perfect, but they are like dust in the wind if we cannot live by them.

It doesn’t mean being insistently upbeat all of the time.  That’s just an act and I can see right through it when I meet it.  But, to be open as a child, ready to jump in the flood puddles and to fall over and to laugh all the way home, to be able to make soup without leeks when necessary, well, now, that is really living.

And, in really living, whatever comes our way, whatever our past mistakes and regrets, however blattered are the dahlias, if we have eyes to see the rainbows, a pair of wellie boots and a hand to hold, this, surely is more than enough.  And, it is the only way to change the past.

By making a new one.

Well, what a lovely welcome back from those I abandoned some time ago, and who, it seems, forgive me my absence!  I really don’t know where I went.  Into myself I think, and that ‘think’ word has a whole lot to do with pretty much everything in life.  Thinking is a veritable rock at times until I find myself in a hard place, whence it may become destructive.

Being shoved onto a new path can bring about me a host, not of golden daffodils, but of shrieking wraiths and hobble trees, all out to trip me up.  If I stop to think about that, all I achieve is a greater number of shrieking wraiths and more hobble trees.  So, although I know they are there, I ignore them, keeping my eyes focussed on that sliver of light way up ahead, and there always is one out there for the seeing.

That light could be a few hours peace, sorry, minutes, in which to write uninterrupted.  It could be the thought of a really strong coffee, or some wind-battered gladioli, blood red and wonky chops that need staking.  I did a lot of staking this summer past.  Hollyhocks standing 9 ft tall and sunflowers dotted about like big yellow umbrellas.  Nobody knows who planted them and everybody knows that such triffidicae cannot possibly stand for more than 3 hours on the west coast without enough ropes and pegs to hold down a wedding marquee in a force ten.  Notwithstanding, they appeared and they grew and they dazzled all passers by, until last week when they made it clear they had done their bit, and fell over.

When life confounds, all small things take on a grandeur they mostly don’t deserve, nor warrant.  This phone call to the doctor, that prescription to collect, this carer to call, that occupational therapist to contact for another hand rail or a fancy gadget to make life safer.  The wood to unload, another to order, to split the kindling, change the bedding, fix the back light bulb in the car,  or to sort out yet another confusion on a laptop or a mobile phone.  In ordinary homes, I am guessing the daily grind is divided into blue and pink jobs, although I’m betting the pink part of the arrangement takes on a lot of the blue task list just to make certain it is completed .  The light in all this, for me, now, is that I am becoming a real whizz at blue jobs, halting only when faced with a chainsaw.  I can see me legless and without fire.  Not a good look at all.

What I have learned, too, is how resistant we unpaid carers can be in asking for help.  I think we think too much about it.  We don’t need help after all.  We have always sailed alone in this wife/mother life having got over the initial crushing disappointment, one that hit us smack in the chops just after we held out our finger for the wedding ring.  Where we were thinking White Knight, he himself was thinking Unpaid Slave, only he never said, because, as we all know, men only grunt once they have exhausted their entire vocabulary during courtship.  I wonder, even now, why on earth I am reading my granddaughters fairy tales, when I really should be reading them Tales of the Unexpected, unabridged.  We never learn……….

Laughter and light, that’s what I want and if it isn’t on offer from outside of me then I just have to conjure it up from within.  Fun and nonsense costs absolutely nothing to produce, has its own inbuilt marketing plan and requires no staff.  The most important thing is to keep moving at all times.  That way, I get through the hobble trees and outrun the shrieking wraiths, which, by the way, disappear (noisily) if you blow a great big raspberry into the place where their face should be.  If, in the blast of some accusation or criticism from the white knight, I get a fit of giggles, it all miraculously goes away.  No darkness is ever stronger than light and it takes one small candle flame to illuminate a room.  I may be one small candle flame, but I am damned if I will let any cold wind blow me out.

The other afternoon I was playing with two of my grand-daughters in the garden,  We rolled down the grassy bank and bounced on the trampoline after planting some hyacinth bulbs in a border.  Earlier I had picked up a unicorn’s horn, sparkly gold and crimson attached to a headband.  it was a bit tight, but not so tight I remembered it was there as I bounced and rolled and planted.  Some walkers came by and stopped to watch us for a moment or two.  My granddaughters are very beautiful after all and we will have made a pretty collage on a green hillside.

Hi, I called out.  You ok down there?

Yes, we are, came the reply, and still they stood, and looked.

It’s coz you’re a unicorn Gaga, said the older girl, rolling her eyes at me.

Oh yeah………

So, it’s been over a year since I last wrote anything much beyond a shopping list, my signature on an official form, or, best, one of my loony letters.  I knew it had been a while, but over a year seems like more than a while.

What have I been up to during those months and seasons?  Learning how to, that’s what.  Learning how to be a carer for dementia, how to avoid confrontation or tripping hazards; learning how to make the best of an ever-decreasing bubble within which I now live.  Oftentimes the frustration and the sadness overwhelmed me, how could it not?  Watching a person recede into fairyland, centimetre by centimetre, unable to converse in the old way or to expect sentient reaction to any of a number of daily happenings, is to live as a fool.  Learning what not to say, what not to do, how loudly to speak or how softly, how to read a mood swing and for it not to confound are all extra demands, critical demands, demands that offer no option for escape, for the person with dementia lives both in the distant past and also in the moment.  What he wants, now, will not wait, even a few minutes; what he needs help with requires instantaneous action, not, any longer, a refusal to budge, having only just sat down.  The person with dementia has only his needs in his mind.  He can do as little about that as I can, but the legacy of doing everything required is one to be most carefully addressed or I will turn into a whirling dervish and fly right off the planet.  So, in order to remain reasonably unexhausted, I must set boundaries.  Well, how dare I!!  Yes, I do dare.  That frightful statistic I read somewhere, announcing that 69% of all unpaid carers die before their time, is a red light indeed.  So, I stop and I think whilst the cross traffic passes me by.  I think of ways, clever ways, kindly ways, softly spoken firm ways to make it clear I am not an employee, nor a slave; that although I appreciate his limitations, frustrating limitations for such an active man, I am not a robot (tick this box).  It is a tricky road to walk and no mistake and I get it wrong endless number of times, when I respond sharply to another interruptive demand for something like ‘lunch’ when ‘lunch’ can easily flipping well wait a minute or two.  In creating boundaries, whilst still respecting that they easily become tripping hazards, I accept that they appear unfair, unkind and selfish.  I will need to erect them over and over again every day till the end of time because they are oft forgot. Whilst I’m busy being firm about them, I must also make them of something soft, something easy to move about, because there are times I do jump in response, not because of a disaster in the next room, but because I cannot imagine what it is to feel that urgent need and to then feel so very upset and angry when She Who Creates Boundaries refuses to leap into her pinny?  Must be awful.

As the truth sank in, the removal of a driving licence, a skipper’s licence, the ability to walk without sticks or a walker, I feared he would just sit.  Not him.  Of course, not him.  He discovered WhatsApp and friends to WhatsApp with; he involved himself with Alzheimer Scotland, with the Scottish Dementia Working Group, and with an X Box.  Yes, really.  He hasn’t played much on it yet, having a spot of bother with the tv remote and control over the working thingy that sends out warriors into futuristic landscapes, but he will, one day because his spirit is still as strong as ever.  I watch him battle with the clues and I share his delight when a riddle is solved.  It thinks me often of a spirit strong, one that loses nothing in the demise of dementia.  It is the last thing to go, as it was with my mum who died in May.  I am fond indeed, of spirit and I have one myself, one that can be confounded at times as I dump a load of self pity on its head, but it doesn’t stay down for long, minutes even, rising up with a chuckle and a terse reminder that there are folk much worse off than I.  Of the 60 odd unpaid carers on this island, I am among the youngest, at 65.  Some of these carers are in their 80s.  Now that, Dear Life, is not fair at all.  I meet them sometimes in the shop and I look into their eyes as I say hallo and how are you?  I know how tough their life is to a degree, but not completely.  We share a joke, we chuckle, we shop and we move on.  That’s spirit for you.  And, as I drive home to deal with whatever comes next, I hold their face in my mind and I smile.  Tough old bird, I whisper to the fluffy cross-eyed sheep that hangs from my rearview.

Takes one to know one, he replies.