Island Blog – Maybe an Acceptance

I know that, when I am feeling tired, things arise that don’t bother doing so when I am not. I have learned this over many decades, not to fix on any choices, opinions, nor decisions when feeling tired, angry or hurt. It’s as if a mind, so clear and engaged with daily life falls into super-tired and then goes deeply weird. Sometimes, most times, the whatever that finds a way into the within of an already compromised state takes on the efficiency and the focus of a drone, with no empathy, no emotive colour nor depth, no ability to connect beyond its own directive. I was going to write that it feels like finding myself in a small space with a whole nest of angry wasps, but, although there is something of that, it isn’t quite the truth. It’s more as if the whole terrain changes, one I trusted, was sure of, my footing securely supported, all my thoughts lining up like good wee scouts, my inner team.

With all of that gone, the troublemakers come in like missiles, like drones, laden with regrets and recriminations. The trigger can be something someone says that swipes a person right back to childhood; could be a moment in time, long long past; could be a choice made in a different time that still troubles up in a bad dream. For me, it’s listening to an audio book today, feeling tired. Although the book is fun and engaging and brilliantly written and spoken, one of the characters has a husband with dementia. She knows it, we who listen know it, even the husband knows it, but he floats in an out of reality. Because the writer has obviously experienced this situation, even distantly, the theatre is accurate enough to take me back to so much of the real situation.

However, I have read acres of books on dementia. They do sadden me, but only at a distance. I was there and for many years. The grief for a strong and heretofore upright, impossible, infuriating, figure of importance and value as they lose their grip, their hold on reality, their control of self, begins way before death. Way, way before. We know it, all the family knows it, all friends know it, neighbours, shopkeepers, anyone and everyone. However, and here’s the bit that got me in this audio book, the man, the gentle, bright, strong and loving man who caught this awful disease, also knows it and chooses to talk to his wife about his feelings of fear, of sadness, of loss.

I never had that. That’s not a poor me thing, nor written with blame in my keyboard tapping, but I can feel, like a punch in my heart, how wonderful it could have been to cry together, to talk, to hold, to share. Perhaps, and I would say this to another who told me just this, it was just the way it was for you and him. There’s hurt in there, an unintended rejection, and maybe an acceptance.

Island Blog – Elephants, Clouds and Paper Smoke

This morning starts at 4am whilst the night sleeps on. In the time between dark and light, the darkling, I sip tea and watch the sea-loch. The air is flat, the sky the colour of paper smoke. Nothing moves, not yet. Then, a sudden arc of silver burst into the sky above the flat water and I know there’s an otter on the hunt somewhere in the filmy depths. The ripples ripple on. Then I see it, the hunter, its black head piercing the surface, only to disappear again into the deep down dark.

I feel dark, even though I know that once the light blossoms into morning, it will fill me up, the light, infusing my skin as hot water does a teabag. They say women are like teabags. You don’t know their strength until you drop them in hot water. It laughs me, even as I know it’s the truth. Today, like every other day, will be a round of mopping and cleaning, washing and caring. And yet, now there is a difference, now that I have admitted to myself and to my family that I am no longer able to care all by myself. I feel a teensy bit of relief, heavily clouded, heavy as a whole sky coming down on me. I used to believe clouds were light as air. Planes fly right through them, after all. But now I know they can weight as much as 800 elephants. That’s a lot of elephants and a very heavy cloud. How does it stay up for goodness sake? I have no answer for that, not being an expert on the matters of cloud.

Walking through the day with my inner judge on repeat. You are pathetic, weak, giving up, what makes you think it is okay to say I’m done? I always knew you would never see anything through. You have always run when the going got tough. You disgust me. And so on and on, ya-di-ya, the whole day long, and it is long, the day, second by slow second, minute by slow minute, hours and hours of it. I fill in gaps, sweep a floor, try to avoid eye contact with anyone, tell myself I have served well, thou good and faithful servant, but the judge’s voice is way louder and she barely pauses to draw breath. I change my frock combo to see if that helps. The outer me might just have some influence over the inner one. I change the position of the kitchen bin, wipe a table, turn up Radio 2, watch the sparrow hawk dive and miss.

I know that at such a crossroads, Lady Providence stands with her hand held towards me. I know I have done all I could. I know the decision is the right one. Dementia is cruel in all ways. It separates and divides. It eats the brain until any chance of a communication flow is cut. It takes a big strong, loving, able, powerful human being and second by slow second, shuts him or her down. The family can only stand and watch, help where possible, encourage all attempts at retaining independence, autonomy, humour. Then the time comes when it’s clear there is no way this beloved will return to his former glory. Ever.

The light is light now, the tea drunk, the morning shoving night over the horizon, blazing white and cloudy, like paper smoke. Roses pink the view, one sweet pea flower, the first, waggles in the breeze; daisies and those blue things I can’t name turn to face the sky, searching for sunlight. I don’t think they will see it this day but, loyal as they are, they will persist in their looking until they fold up for rest once more. Goldfinch spangle the fence, taking turns on the nijer feeder, bickering, flitting. Across the sea-loch a heron stands immobile, staring into the deep dark waters, patient, waiting, watching, beneath a cloud-heavy elephant sky, the colour of paper smoke.