journey

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Island Blog – Two Sparrows

I love my work. I’ve said this before, I know, I know, but I am happy to say it again. The energy required, the energy generated, both are like two sides of a something that has two sides, which, pretty much defines all of us. Our bright talents can go dark, but that is all about personal management, a noticing, the ability to uprise road blocks should one be careening, and our inherent goodness, because we all have that. It is slightly off-pissing that we need to keep a hold on the wonky planks of our personal attics, to ensure that the ‘cobwebs’ don’t become thixotropic, dense. cauterising. Oh, we who are honest, know that place, and there’s a choice thing there. Actually, it’s mostly an ‘oh bugger’ because what we inherently know, regardless of parental influence, is that we don’t want to harm, that we are listening, noticing, learning.

No idea why I went there. Perhaps it is because on my journey to work I meet eejits who are, very possibly wonderful people but who don’t feel the need to wave a thank you as I skid off into the briars and sludge in order that they, in pristine big-ass vehicles with one wife and possibly one dog, slide by. I’m happy with the slide, and I always wave first, but when another living, breathing, vulnerable human makes no eye contact, proffers no acknowledgement of my skid into the briars, I confess I do ‘miff’. Momentarily. It wonders me. Is this how life is for them in wherever they come from? What I do know is that it isn’t a warm community, like a remote island, wherein we all recognise the need for each other. And that is sad.

Today, as the cafe filled with soup orders, dogs, children, bikers, walkers, holiday folk with a hunger for delicious scones and fantabulous cakes, coffees, herbal teas and a welcome that seems to bring everyone together, there was just me, behind pots and bowls and a sort of lull. I heard a sparrow cheep, insistent, and recognised it immediately (the benefit of a mostly silent island life) as a young one shouting at dad. It’s usually dad. Mum has had enough. She is not there for the endless ‘feed-me’ demandings. I emerged from the pots, nobody else there and followed the sound. As I passed by the tables, conversation flowed, nobody else caught this, to discover two sparrows inside the door, on the stairs, baby shouting, dad (I imagined, exhausted, with a ‘what now?’ in his voice}. I slowly rose the stairs, the door behind them, the birds, thankfully open. I gentled ‘ off you go, you guys’ as if they could understand me. Eventually they did.

Inside the busy, the curriculum of any work, the random, the sparrow, will fly in and will think you. Some will notice and respond. Many will not. I want to notice everything, everyone, all of this life, the random, the awkward, whilst learning the ability to accommodate, even to whisper a freedom. For me, there is nothing else.

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Island Blog – Awake the Echoes

Before I left on my journey into the unknown, my head was a full chorus of discordant voices, a clamjamfry of chaos, each voice certain it was in the right place and in the right choir, which none of them were. Once I realised that I held the baton, I regained control, thanked them for turning up and sent the whole lot packing, sans pay. This confusion was birthed from my own fears, of cancer, of therapy, of travel, of the ferry sinking, the train crashing, or not running at all, of the Zap Centre not able to find my name, etc etc. I imagined the latter and agreed with myself that I would be anyone at all, just to get this treatment into my past.

As I moved into the freezing and draughty corridor pre boarding, an actual ferry sat docked and gape-moothed, swallowing cars and vans and bikes, I felt those think-eejits choking out last breaths. Funny that……once I get the hell on with something that affears me, my imagined horrors become as wisps of nothing. The ferry did not sink. The train left on time and arrived in the right station. The hotel was expecting me and my room was comfortable and safe. For five nights and days I moved with growing confidence, walking the short route for morning radio-zappery, and thence to the Maggie’s Centre where they know just how to welcome all of us cancer folk, and those connected, who want to talk or don’t want to talk, who want tea or coffee or just to wander alone.

The imagined fears think me. Echoes, they are, of old voices, the shoulds and coulds and musts and might-but-didn’ts; of failures perceived, in fact, of all that our spectacular minds can bring to bear, in order to pulp us down. I can summon up a massive storm just thinking about a short trip somewhere, and, I know that many laugh at that. Overthinking, too much imagination, catastrophising, I’ve heard it all, and used to define myself as ‘faulty’ from such opinions, but not now. Now I have learned that, for someone like me who sees these possible disasters, albeit ridiculous, is, in fact, a wise person. I still go, I still feel the fear, but I still step out. A lot of the fears, breathed out from lungs of brass, I flap away, but some I pay attention to and then prepare, because I damn well will not give in or up or over, never mind the oldness and aloneness of me. And if, and when, I hear the echoes awakening, the old fears, the invitation to say no to every single adventure, even the weeny ones, I rise. Every time I rise. I don’t say it’s a breeze because it isn’t. It’s a bloody effort even to admit I am thinking about this journey or that. But, I will not settle on the settle.

Naturally, like everyone else, I would like the echoes to go away for ever and ever, but they won’t. They are rooted in a very long past, parents, their parents, and their parents, crusty old judges, confined in the corsets of their times. They are in our blood, and they will rise every time we feel anxious about anything. We dont have to listen, well, we do, because pushing them away only lasts a wee while. We need to say, hallo, I hear you, but you are not helpful to me so please go away. It works. Then you, or I, pull up our boots, feel shit scared, and get out there, no matter what comes next.

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Island Blog – Happy Days

Well, now I can say that I have had an MRI scan, instead of just hearing about others being pushed into a tube, ear plugs and defenders attached, and with much encouragement to remain completely still for half an hour, at the very least. I don’t ever recall being completely still for that long, in my whole life. The knowledge that, to move at all will require a re-scan, is enough to have my toes twitching. My face was pressed into a face-size hole (not my face size, however) and my breasts too, although they didn’t share the face space but, instead, were ‘placed’ in other holes, also not my size. It seems that other women are way better endowed than I. Hey ho. The MRI Controller, a delightful smiling nurse in dark scrubs and with a beautiful face and smile, said things like, Don’t Worry, Think Happy Thoughts and DON’T MOVE. She also said that, when the silver stuff begins to pump up my arm and into my chest, I will feel it like a frozen worm slinking up my veins. Oh, yum!

Pre the scan, I had to answer a load of questions. Do I have any metal piercings? Am I wearing any make-up which, nowadays, has metal in its mix, or can do? Do I have tattoos, allergies, diabetes? have I ever had eye surgery? Do I have any metal crowns? What, like the Queen? No, she chuckled. Teeth. Do you weight over over 20 stone? Oh, ah, no. Tick No to all of the beforeness. And off we go, no, me go, in the delightfully attractive hospital gown/marquee, with the opening at the front. I remained still, ignored my toe twitch and took myself up, up and away into the sky where I met fairies and cherubs and angels and a lot of space. Radio Something blasted tunes into my ears whilst the scanner chugged and beeped and roared and then did a rather attractive staccato thing. The sounds kept on changing, kept me entertained until the frozen worm began its journey. I didn’t even twitch but kept up with the fairies and cherubs, flying high above all of it, the scanner, the cancer, the reality of where I lay, my arms down by my sides, breathing in and breathing out, my body calm and still. There was no flipping way I was going to threaten the success of this scan so I didn’t, something to do with my stoic parents, or something, someone. You don’t fail, that’s it, thats the thing, that is that. So, mostly, we didn’t. (not sure it helped, that attitude in life. Failing, as we all know, is just another step towards success. I digress)

Home now, home now, jiggetty jig (Pigling Bland, for those who never read Enid B) and in a very lowtothegroundnoisyfastwonderfulclassicsportscar. Lying down, I was, which was ok until I clocked that he, the driver, was also lying down. I watched the sky mostly, as the road swirled by, loops and curls and dips and rises and all the while hoping he wasn’t doing any of that sky watching stuff as huge lorries, massive SUVs and even the ordinary saloon, big with family and dog, passed us by from at least a 5 foot elevation. No matter. We zoomed like a focussed insect, overtaking (super fast) holding the road, taking corners as I would never take them, aka, no gear changes, and with an excellent driver, arrived back home in no cafuffle at all. He did ask me. Were you scared? And I could honestly answer No. I told him this. I am old. He says Elderly, arf. I want adventures, still, fun for sure. I may be scared about cancer and scans and lungs and breasts and oldness But, and that But is important, I do not want to turn back, fold, become less of that which my spirit still is. We have tunes on, me and my Lotus Elise driver son. He is cooking salmon, prepping a salad, I am writing this.

Happy Days.

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Island Blog – Here and That is How it Is

So here is how it is. Ten days of a visiting son with his kids, this morning, gone, the air sucked out of my lungs as his car disappears around the corner. Nothing has changed. The sea-loch still rises and falls to the whimsy of a Sturgeon moon, the birds still flit and flut between feeders, the house still stands strong, broad shouldered stone, protecting me from a load of outsidery things. The shop still opens at nine, the builders head off to work chugging iron bru at 6.30, my neighbour heads off to his fishing boat for another day of net tangles and swear words. And yet everything has changed.

I meander through the morning telling myself not to focus on the gone thing. I tell myself to get busy as if all is as ordinary as it was 11 days ago but as the hours slouch by I know this gone thing will catch up with me, with the hours, with my thoughts. I feel old, stiff, annoyed with both. I never thought I would get here to this old feeling. I used to laugh at such nonsense from my ma, my scary mother in law when they looked as I might look now if I allowed anyone to see me looking thus, which I don’t. Feeling old, I told them, is one thing. A thing you cannot avoid. Presenting it is a choice. Don’t make that choice. I hear again my wise words, spoken through a young set of lips still plump, words begat by the father of ignorance. Who can know the feel of old until it arrives one morning with enough luggage-intention to stay long term? Nobody. What we do, when this guest arrives is to choose our pretence. It’s a bit like a journey on a false passport. This is me, not me, me from choice. I may not be this person but I am determined you will acknowledge this ‘me’ because if you don’t then I am grounded with the old feelings, the fear feelings, the lack of swing and chortle feelings and I refuse, point blank (whatever that means) to accept that.

I walk as I always walk, noticing the grasses husk and ochre. I touch their still yet softness as I pass. I see bracken spot and curl, the carpet of fallen leaves, already brown and crisped into tiny coracles on the track. I see hazel nuts overhead, rowan berries blood red against a blue sky, beech leaves goldening high above me. The ground is soft and mud blown, cut and spun into soup by yesterday’s sudden thunderstorm, here and then gone in a matter of one short hour but nonetheless a herald of Autumn’s closing fist. We may have more sunshine days, who knows, but the word is out among the seasons and the Your Turn thing is shifting. I pass by the shore and look down but cannot go. For ten days it was crazy down there, endless loud girls crab fishing, the growl of a quad, the squeals of delight, the absolute takeover of a small thrust of rocks, the learning, the delight, the falls, the fire lit to cook noodles or sausages, the glorious family fun of it all. I continue around the track, remembering. In my mind I see them all, bright eyed, ready for nonsense, scaring me with their bravery, no, not that. It is their confident youth. The way they skitter like lizards over all terrain, the way they sparkle at cake or chocolate or fruit pastilles. The welcome they give me. The whites of their eyes, their teeth, the shine of their wilding hair, the flash of their feet as they dash past.

They are gone and it is a heavy thing. I know, I know (please don’t fix feelings through logic) they will come again. Others will come again to inhabit this glorious place, to redefine it, to render it their own for a short time. They will sing into the clouds, the blood red sunsets, yell at the moon, cry at the falling in, laugh at the cake, fish for the abundance, argue, storm off, come back for a warming hug. I know this. But this day I feel their loss deeply. And that is how it is.

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Island Blog – This and That

Sitting here, this evening, I reflect on the past couple of days, the content, or imagined content of which halted my footsteps for many days before. I had found a breast lump. Bad timing even for a positive woman, fettered as I felt by my long isolation from the world ‘out there’. In fact, I haven’t been out there for over a year now, cocooned within a leather protective casing of caring for a very vulnerable old dude. It suited me, if I am honest, the not going out there thingy. I am, by nature, happy being isolated, solitary, independent with more work required, individual, content with my own company. I have barely been to the local shop since last March and my everything is delivered either by the post or by hand to my door. One could get lazy inside this. I know that.

Anyway, there I was facing a ferry trip, masked like a bandit, humphing a rucksack of overnight-ness and stringing a small Poppy dog alongside. How will she behave? Will she pee on the ferry carpet? (she never would) Will I find a close encounter too close? Will my house fall down whilst I’m away; will that old tree fall on the garage roof; will floods come and wash my home away; did I turn off the lights, lock the doors? All that hoo-ha. Never mind what you call it and how you chortle, it is still real, still clusters beneath a person’s panic button all ready to burst forth once pushed, especially, and I have clocked this, when that person has been cocooned for so many months, apart from the rush and bustle of the out-there world. After all, it could be unrecognisable to me. People could be walking around in pandemic suits for all I know, slow stepping, avoiding each other by miles and breathing stored air in order to avoid breathing in the real stuff, the air that is ever changing, morphing, floating over oceans and over lands and continents with all sorts of names, full of all sorts of stories and holding within its gasp a potential lethal. Shopping bags might be obsolete. Maybe the out there folk have to pull on their pandemic suits for a shopping trip that can only be as successful as the hold of their arms.

So, off I go. Two sons, two strong men, two young men, two sons, gather me up and the rucksack and the non-peeing-on-ferry-carpets dog and we head onto the mainland. The ferry is all masks and the two metre rule. Good for Scotland, I remember whispering to myself, thus muffing up my glasses and rendering me momentarily blind. Scotland is getting this right. I work out how to talk to myself by holding my fingers over my nose and breathing down, like a puff. Now I can see. But, there is nobody. There are 3 passengers on this massive ship capable of carrying many hundreds. I have been aboard with those many hundreds and watched them, the families, the dogs, the way the children burst upstairs to see, to see from the ‘flight’ deck, or the way the exhausted parents find their way to the outer deck to drink in the astonishing beauty of the passing hills and their sharp defines as the sky comes down and says Stop Right There. This time the ferry is empty, like a ghost ship. I feel a bit foolish behind my puffing blue spectacle-clouding mask, but nobody is laughing at me. I arrive on the mainland and off-loading is barely that. Three people don’t take much off-loading.

I am driven the almost 3 hours the the hospital the following morning through mizzle and cloud. He knows what he is doing, strong, calm, googled. He will mind the non-peeing dog. Go Mum. I follow the signs to Clinic 3, very clearly marked. There is almost nobody here either. Nurses, come and go, masked and chirpy, friendly, welcoming. I burst into a waiting room. The chairs are wide apart, tape markings on the floor. There are a few other women waiting, nervous, as we all are. One jiggles her foot, one taps her fingers on her knee, another is busy on her phone. They guide me to Reception and I clock in from behind a big barrier. I have to repeat my name as she is behind bullet proof glass and this big barrier and I am thankful she is of good hearing. I take my seat. We are all quiet beyond the jiggling. Someone opens the doors to the almost outside, for air flow and we have no shared body warmth to soften the push of cold air over bare ankles, old skin and the generally accepted loathing of draughts. We hold. For an hour, for more. Every name called by one of the bright buttoned nurses is one we wish we owned. The relief of being named, of our own name being called into touch is a whole body/mind thing. If that name belongs to another, we wish them well from behind our masks and our fear. We don’t need to ask what these women are here for. We know. We feel their tension as we feel our own.

First the doctor, then the mammogram. Not one of us will avoid this. Some of us know it well and for others it’s a first. There are young women here, skinny teenagers and I wonder of their stories. Some partners or mothers try to be here, but a very kindly nurse tells them Only Patients Here, I’m Sorry. I can feel the bereft as they unwillingly leave. Text me, they say, or mime. The woman remains, legs crossed, jiggling, telling herself to be strong, saying I can do this, I am not afraid, and then spending the next hour working on convincing herself of that.

Mammogram. I am an old hand at this. I cast a backward glance at the young woman who smiled at me, who connected. Your turn soon my lovely girl, I say from my eyes. The process moves on. The nurses at every stop and turn, every confusion, every arrival are more than magnificent. They are Grace and Humour. We are undignified to say the least within this place. How trained they are. How emotionally intelligent they are meeting our diminished but ferociously determined woman strength as they strip our clothing and pull across the rather attractive curtain, through which our boots poke. So, here we are, unclothed and yet booted, as if we just know we can do this, whatever comes of the pummelling and the indignity.

For me it was a lucky escape. I have the all clear. There is nothing to report. I wonder of the rest. I can see their anxious faces now, still, and will for a while. Their Glasgow humour is remarkable. These are women who do not live as I do; who do not have it easy; who live lives I will never experience. And, yet, within that chilly blast, that fear, that doubt and worry, they could banter and laugh and pick up the nurse’s joke and take it on and in doing that I learn from them. They have known tough, and may yet know it again, as I never have.

As I left them behind, still waiting, their eyes asked me. I smiled an ok. They were happy for me. What they face right now, I cannot know. But, we met in that place. I came home to warmth and safety and an all -clear.

Did they?

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Island Blog – This Journey

I will agree that these lockdowns have given us time to reflect. It has also given us fear and a stuttering of easy movement. Any journey holds both. Even going to the local shop on a little island. Imaginary demons lurk on every door handle and in every breathy encounter. Even from behind a mask we are cautious of guffaws so we try not to be funny, even if being funny is our absolute thing. For those of us who love to cheer others no matter what, our vocal chords are compromised if not fettered, our lungs on hold. We turn our faces away from other faces we know so well, pushing out a gentle Good Morning with as little puff as we can, for we must not forget the responsibility we carry. Touching anything is risky. Touching each other, forbidden, even if touching is our absolute thing. It is stultifying at times and we must not give in to imaginary fears. We must keep journeying for we cannot hold back the days any more than we can hold back the virus. Both are invisible.

Other invisible things also keep coming, rolling beneath our feet like thunder. These things can confound. Not now, we say, Not Now! But they do come anyway, bringing birds into bellies, all a-flutter and a-twist. Some of us must go to another place, a hospital, perhaps, for a check up or an essential operation. We must ride the road, traverse the water, open doors, breathe in air that may or may not be healthy and fresh. I think of these folk, compromised, fearful. I hope they have good family support. I wish them the very best outcome and enough courage to push away the fear. These journeys, in ordinary times, were bad enough. Now it must feel like a walk into Dante’s Inferno. I know of some who are back home now and healing well, who have journeyed through the Inferno and are cool again and safe. This is how it can be and this is what to focus on, never mind the flutter and twist of belly birds. It is natural to be afraid at such times. We feel thus as we face the unknown.

My way is to look at the other side of things, the flip side, the arrival and not the departure. When a journey is inevitable, no matter how badly we might wish it away, there is a choice. Look at the fear and feed it, or don’t. Instead look at the smile on your face when it is all behind you, when this journey that looms is already a fading memory. Look at what you can learn as the journey flows beneath you. Notice and reflect and store these observations away for a future think. Precious are these observations, the shared chuckles, the muffle of masked conversation. Look out and up at Nature as she flies by the car window. See how the clouds part and conjoin, how the sun takes a quick peek at you, enough to dazzle. See how quiet are the roads, how the rain spits up from the car ahead, how crimson are the tail lights. Listen to the music coming from the speaker. In other words create a distraction, create many of them. What you allow into your mind is what your mind will develop. It is such a powerful lesson to learn. No matter the journey, no matter the timing, we have a chance to learn something we never imagined was there at all.

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Island Blog – From There to Here

Leaving 40 degrees and arriving back to zero in the belly of a couple of planes with the ambient temperature of an airport or two in between requires a person to be vestment canny. Well, I really don’t know what I was thinking as I packed for Africa but it appears I put little thought into my return. Today I am wearing most of my frocks over jeans with a vest at skin depth, a long sleeved tee over the said frocks and a jumper to complete my shapeless bulk. When I step outside, I add to that a puffa jacket and a scarf long enough to wind into a neck brace. A most fetching look.

I noticed, among my fellow passengers, as a foggy Glasgow appeared at the windows, that they had considered a vestment strategy. How had I not? This question has thought me a lot since I returned to zero. All I can guess is that I was in such a flapdoodle as I packed for the sunshine that my brain dealt only with the immediate. Then I realised that dealing with the immediate has become my default, for everything is immediate around dementia care and any unnecessaries are pushed into the shadowland. Although it is delightful, in many ways, to realise how much of life can be unnecessary when necessary, it behoves a girl to remember those things that still await her in the wings of her life. In Africa I went to a spa and had my nails done. This was a first for me as I usually just bite them off or clip them to the quick so as not to scratch anybody by mistake (or intentionally). I have enjoyed watching my French polish flash little white moons into my looking and this little indulgence will not revert to the shadowlands again. Although this indulgence may not be a regular thing, at least I know the pleasure of it. It isn’t just the nails and how they look. It is the time taken for myself, to sit and watch someone else caring for me. This is important, for all of us, not just me. Taking time to spend time with Me is not something many of us talk about without either getting embarrassed at the blank faces around us as we try to explain what we mean, or getting the giggles. Well, it does sound a bit ‘out there’ does it not? I think the key is not to bother explaining it at all to a world completely caught up in logic and the daily dash to Nowhere. Of course, not everyone is doing this dashing thing but most of us are if we are honest.

But the wisdoms keep coming. They go back to Rumi, to Ancient Greece, and further back, and we still don’t listen, because we have not learned how to live this way, the way of emotional intelligence, the way of good health, calm hearts and heads, peaceful sleep, gentle breathing and love of self, not matter what the demands of our lives. I don’t think it’s easy, far from it, but I do know we need to wake up to a different way of being. In a hysterically busy world we are but cogs in a million wheels, or that is how it seems. children, work, families, governments, religions, rules rules and more rules can overwhelm the very best of intentions. We can feel like tumbleweeds in a desert wind.

So how to change that feeling of being out of control of a life? I am no guru with a mouthful of answers but what I have learned in this decade of dementia care with all its associated ‘immediates’ is that I want to come out of this as intact as is possible. Too many of my compadres have fallen sick as a result of intense caring over a long period, wherein any time for self was intermittent and without a plan. Perhaps, like them, I thought it wouldn’t drag on for years but it does. Perhaps, like them, I thought I could wait for me, that I would be there at the other end, just as I was before. I don’t now. Now, I know better. This is a journey and there is no map, no destination I can stick a pin in. And it’s ok. In fact, I would not have learned the valuable lessons I have learned had dementia not come knocking. One of these lessons, the one I most value, is the importance of self love and how it never seemed important before. I don’t believe I am alone in this. With accusations of selfish up-yourself coming from older generations, schoolmarms and all the other ‘For Your Own Good’ ies, it would have cried anarchy and that meant trouble at any age. But I have learned to own the ‘selfish’ accusation and it fits me well. Let them think that, is what I said to myself and myself grinned wide.

There is no rule book for self love either. Only this. Stop and listen, as the world threatens to swallow you whole and the noise of it is deafening and the demands relentless, to what your heart whispers. Hear it and do as it guides you. Just once will do for now, because when it whispers again, you will hear it more clearly. Then go with it a second time, a third, a fourth and on and on until your heart is a match for both the outside world and the inside mind. I admit there is quite a lot of stopping required at first, until you get in step with You, but the rewards are endless. Eventually the outside of you fits the inside no matter what Life brings.

I arrive home tomorrow. Let’s see how clever I am at walking my talk when the old ways and I collide on a familiar doorstep. One thing I do believe in is all that stopping to listen to the inner whisper.

It just has to have made a difference.

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The meaning of words

latte

 

Talking with a friend the other evening, we discussed the meaning of words, how we each see and hear a word differently according to our experience of using a word in context.  Both of us might have liked to take the conversation deeper, but as we were at a celebration, it was never going to happen.  Happy people, all saying hallo, moving around the room, laughing, joking, having fun, sharing words that require no inner Googling.

We are taught in all the good books to accept, that acceptance is half the battle, half of any battle within a relationship, whether in work, school, home or community.  To accept that we are different, not just on the outside, not just in the way we see colours or moods or situations, but deep inside and based on childhood learning, familial teaching, experiences and lifestyle.  How on this good earth can we ever expect that to work?  It presupposes that whatever subject arises between us is never going to land in a soft place, unless, of course, we can accept our differences and just enjoy the chat.  I have a friend who is colour blind.  He sees everything in shades of grey.  I can wax as lyrical as I like about the Autumn colours and he will just chuckle.  I imagine for a moment not being able to describe anything at all in terms of colour.  Well, I can’t imagine that, and yet, he, who has never seen red or green or anything in between is barely phased at all.

That particular example is pretty easy to accept, but there are many others, millions of others where we can potentially butt heads.  I want white walls and you hate white.  White reminds you of hospital waiting rooms.  I attempt to change your mind because white, for me, is cloud, ice cream, frost on winter branches, school socks, Persil.  But I cannot change your experience of white any more than you can change mine.  One of us has to accept.

Or, is that resignation?

My friend at the party did have a moment of two to think deeper whilst I yelled my return hallos into a very noisy room.  He has always been good at that, being a deep thinker and on his feet regardless of noise.  He first thought that resignation sounded like giving in, like a weakness, a washing of hands, but, then he found a different way to understand that word.  Resignation is pro-active, not necessarily reactive.  ‘I resign’ sounds powerful, autonomous, in control of self, of my own mind.  It’s also a very good way to hold onto dignity should I come to the realisation that I am about to be fired.

Back home, I know that I have consciously chosen both those words to explain how I am managing my role as carer.  I accept that I have been gifted a role in this new production.  It isn’t the lead role, nor the one I would have auditioned for, but it is the one assigned to me.  On a minute to minute basis I get to choose how well I play my part.  When I meet bad temper, does it cause me to react like for like?  Yes, sometimes, when I am tired or when I take my childhood understanding of those words, the way they fit together, the way they sound and let them hurt me.  To him, they mean nothing much.  He was just grumpy, that’s all, and once the words are out, five minutes later, he is cheery and chatty and asking me if I slept well.  I was seeing, at that vulnerable moment, colours he never painted. Those words, projected like a fireball, were aimed nowhere in particular and rooted in frustration and fear.  I get that when I am not tired or low or feeling sad.

Then, there is resignation.  I am resigned to the fact that I am here, right now, and for the long haul. Does this make me feel weak?  Am I giving in?

Absolutely not.  In choosing that word I take control, not of the situation, not of him, but of myself.  I resign myself to the fact that this will not get better, nor will it go away.  I resign myself to no end in sight, to more bad temper, more of everything.  And I learn, bit by bit, inch by inch, that if I watch the words carefully, seeing them in my colours and yet understanding that he may well only see in shades of grey, then I can accept that words are just words.  It’s in the interpretation of those words where lies their power.

If I sound like your mother when ticking you off about not picking up your socks, you will scoot straight back to childhood and respond accordingly. You will probably whine and then sulk.  I undoubtedly do sound like a mother, but it will be my own peeking through those words because she is the one who taught me the inflection and tone and colour of a ticking off.  I do it her way without a second’s thought, and, as all mothers around dropped socks sound much the same, I could easily sound like your own.  I try a different tone, a different choice of word assemblage floating towards you on a fluffy cloud, but the message still stands.  ‘Pick up your fricking socks will you!!!!’  And the response doesn’t change.  Nobody responds with a ‘Of course I will, I’m so sorry, it will never happen again’ (aka an adult response) do they?

So, if none of us have really ever grown up at all, then how do we manage to look and sound like adults right up to the point when words blast us back to the playground?  We may be suited up and sensible but if we don’t begin to understand that words mean different things to different people, and then to consciously work on our childhood bungees, learning how to release them, to become the adults we purport to be, then wars really will never end.

If dementia had not come knocking, I would never have travelled this journey of learning, of inner Googling.  It is humbling, oh yes indeed, uncomfortable, yes, angry making and very frustrating at times, but the lessons I am learning tell me that whatever circumstances any of us live in, we can always go deeper, become stronger, wiser, more aware, more compassionate, more ready for fun.

More likely to wear the Unicorn Hat.

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Island Blog 146 Travelling Light

suitcaseAs I pack my bag for the trip to the Reader Room on Skye, I meet all sorts of thought tangles. What to take, what not to take and in which suitcase. The big stripey one or the smaller spotty one? Both have noisy wheels and both weigh too much empty. I won’t need much, will I? Just jeans and tops, a warm jumper, walking boots, books, notes, wash things, face paint, a frock for the night, leggings. The smaller spotty one will do. Until it won’t.

Travelling light is a dream of mine, almost a passion. I want to be light and flexible, easy to move along please, to glide through doorways, over metal bridges without needing CPR on the other side. I want to fit into that space the huge-suitcased lumberers leave between themselves and the dangerous side of the pavement or platform. To scurry, hurtle, dash with momentum and forward thrust. I want to be at my destination before half of these goodly folk have reached the ticket barrier. I catch earlier trains that way, denying myself the takeaway coffee, the creamy bun. I don’t push or shove. I am perfectly respectful of the Overladen, but my constantly working mind maps out the fast route and my feet take me on. I don’t mind queuing at all and must be the only Brit who doesn’t. I just factor it into my dash to wherever I’m going, and speed up where necessary when momentum is paused.

Travelling light, I tell myself, is a state of mind, a decision. Taking too many changes of clothing, just in case, comes from a place of fear. Will I have the ‘right’ thing to wear? Will I be too cold or too hot? Have I the right shoes? All of this is dithering and arrives me laden, out of breath, hot, bothered, and with a load of unnecessary vestments, not one of which gets beyond crumpling itself in the dark depths of my suitcase. But we all do this dithering, if we’re honest.

When I first decided to travel light, it was to a funeral in Yorkshire. I just needed the gear for the church, and mufti. We said bye bye to the kids, minder, collies and cats and left Tapselteerie. It was coming into York that we discovered we had left the cases in the front hall. As our life had always been lived by making good decisions quickly in the face of adversity, we dived into a dress shop and bought this and this and that, then shoes, and arrived at the funeral with the labels still attached. Nobody cared. It was enough that we had made the journey.

The second time was when I went South for a different occasion, on my own. This time, I did have my lightly packed suitcase with me, too heavy even when empty, and handed it over to the nice Easy Jet steward at check-in. I arrived, my case did not. Mum and I dashed to Sainsbury’s, picked this and this and yes, shoes, and off I went to my date. Nobody cared. It was enough that I had made the journey. My case arrived home ahead of me, minus a handle, rendering it completely pointless.

It has happened since, the careful planning, folding, fitting into a small space, all that I think I might need, in case of shipwrecks, strandings, sudden invitations to a military ball, a funeral, a heatwave in October, that my luggage has abandoned me. I have always found a laugh in it, after my initial fish wife impression. I have borrowed clothes I would never buy, applied make-up all wrong for my small pale face, shared toothpaste, boots and even underwear, but, most of all, I was given the chance to find my sense of humour and to lean on it as my support. In the absence of things, I found people, and people can rise over things every time. It’s boundless, the human spirit, warm and strong and constant. Their handles don’t fall off, and in the main, they do what they say they’ll do, and much, much more.

But we forget don’t we, as we live out our lives as islands.  We think we must have everything we need with us, just in case.  We imagine, with horror, the disaster of being cold, or hot, or lost, or stranded, of our train/ferry/plane being late or worse, cancelled, and yet, in all of those circumstances I have found human warmth and friendship.  I have found team spirit, good attitude and kindness.  In times of trouble, we look to each other.  Sometimes we might consider doing that every day, troubled or not.  It might make us less fearful.  We might engage in sharing ourselves with others until it’s easy to do, natural, uncomplicated.  All of us are alone, but we can travel side by side.

Now I’m going back to fret about packing, about the ferry being cancelled due to gale force 22, the bus breaking down on the way north, and, finally, me arriving on the wrong day.

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Island Blog 124 – Chiaroscuro

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It’s not a sausage.  It’s a delicious word, nonetheless, and it is the meeting point between light and dark.  Of course, there is always a meeting point between light and dark, day and night joined together until the sun burns out, the light and dark, or shade, in a painting.  Used in the world of opera, it describes two voices, one soprano, one deep, might be contralto, might be tenor or bass, joined to create a thrilling balance for our ears to hear.

So, this lovely ‘meeting of opposites’ has a pretty name and if you say it with an Italian accent, plus the hand gestures, you can quite lift your day.  Chiaro, means ‘clear and bright’, and Oscuro, dark and obscure.  Five musical syllables, and the ‘Ch’ is pronounced as ‘K’.

This meeting of contrasts is everywhere in our world, and, without one, we fail to see or appreciate the other.  When it rains a flood for weeks on end, and the water moves indoors, it must be a very dark time.  Outside, in the village hall, on the sodden streets, in a corner shop, there will be smiles of light, offers of sympathy, support and hope.  I don’t have to see it for myself to know I speak the truth.  Whenever life feels dark, somebody or something casts light in our path and, with that light, we find we can go on a bit further.  At another time, darkness brings a welcome relief.  It’s the balance than matters.  We want both in equal portions to find a happy rhythm.  But let’s just consider the chiaroscuro of life, the meeting point, and an entity in itself.

As we look we find ourselves, for we are both light and dark.  All of us.  Our relationships, too, for they are also a meeting of light and dark.

Well, you can forget the dark, someone might say.  Who wants dark in a relationship?

Have you ever met somebody quite unbelievably light?  For this person, everything is ‘wonderful’  I have met such people and I didn’t believe they were real at all, for it is against our human nature to be all light and no dark.  Of course, the dark bits can be hidden for years, but they will show themselves in behaviour choices, skin condition, ailments and disease.  We are fashioned in balance, and our journey through this life is one of learning and more learning.  We develop a creative agility in order to survive and this means we must recognise the dark and the light and make them both welcome at our table.  I know I have wished for all light and no dark, but, even as I wish it, I know I am a fool, for how could I ever really feel another’s pain and grief, if I had never felt my own?

I have heard folk banging on about the shoulds and shouldn’ts of benefits, taxes, governmental rulings, as if everything ‘should’ be dished up on an endless supply of pretty plates.  I know that some are struggling, many are struggling, with real problems in their lives, with limitations and deprivations I can only ever imagine, but hand-outs seem to be expected across far too wide a swathe of humanity.  If we sit at home, watching complete nonsense on the tv and building on whatever is currently causing angst, and never step into the light of day, of course all we are going to see is darkness. If we feed Black Dog, Black Dog will grow big and strong.

I remember my old granny telling me that when I felt sorry for myself for longer than ten minutes, I needed to cheer someone else up, with a phone call, a visit, a text message, and never mentioning one word about my own self-pity.  My mum always says she is ‘absolutely fine’ when anyone asks her how she is.  And, do you know what……..  both those women have it nailed, because in both cases, their refusal to wallow, their very act of lifting the collective moment, initiates a dramatic change deep inside.  I can leave a house, having arrived with both my legs heavy as old porage, my chin scraping the ground and all my aches and pains playing a noisy percussion throughout my body, as light as air and thinking no longer about Me, me, me.  Something extraordinary has happened quite silently inside me, something that tells me I am the chiaroscuro of the afternoon, for, in me, the light met the dark and became a thing of balance and beauty.

Next time you look at a wonderful painting, or listen to a piece of music, or a song, remember that, although there is both high and low, dark and light, lift and fall, tears and joy, that this is what, this is who we are too – a glorious blend of opposites.

And then step out and share it.