I always feel better after writing a blog. Is it, I ask myself, to offload, to teach, to preach, to, in other words, misuse my public forum? It’s a goodly question to ask myself. Once I have ferreted around in the cellars of myself, once I have come up feeling strong in my purpose, sure that it is not about me but about anyone else who may click with something I write, I write. This is one of those well-ferreted writes.

Today was troubled. The way it works for a full-time carer is this:- Day begins hopeful, trusting and light. Then one becomes two as the one in care descends the stairs, floating on metal poles and thanks to Major Tom, aka the chairlift. This is when the mode and mood of the day is proffered as IT. Now I have a choice and a decision to make. If the gloom descends with him, then I must attend to said gloom. I can resist it, but we all know resistance is futile. I can poke at it, ask questions, play bright, but I can hear my voice, in a slightly higher key, sounding sharp as badly cut tin. This won’t work. I lift my ass from my seat, round to the kitchen, make coffee, hot strong and black. Not enough. This gloom is following me, I can see it, smell it, feel its touch on my back. I swing about. Go Away! I hiss, but hissing works no better than resistance. I can feel it pulling at my skin, seeping in, changing me.

The day rolls slow. At 10 am I bake a cake, thinking, this will do it. It’s my usual flat pancake but with cherries which makes flat okay. Taste is everything, after all. We wander through the morning, him restless, moving moving moving all the time, the click and whir of the wheelchair setting my teeth on fire. Ears, I say, stop listening! I have always believed, and proved, that ears are obedient souls, if you organise them right. Pulling birdsong forward and pushing clicks whirs and other unpleasant noises back works well, for a while, but I must be vigilant. One relax and the click whirs are wild in my head whilst my teeth could burn down Rome, even from here. I read the affirmations on my kitchen wall. You can do this. I’m doing great. I believe in my dreams. This too shall pass. Those sorts of affirmations. Ya di ya I tell them today, but I don’t rip them down as I have in the past because that is resigning myself to the gloom. I cook, walk, feed birds, watch the clouds, berate Lady Moon for not showing me herself at 4 am and keep going, keep going, keep going.

It’s like holding up a bridge every single day. Just me (or just you). Mostly I can do this (so can you). Mostly. But it is exhausting, endless and with no end in sight. I have to be cheerful for two every single minute of every single day (so do you). I have to think ahead, plan, make sure the way is clear, be kind, laugh, smile, show up no matter how I feel or what I want. I could go a bit further for a walk. Easy. Not. I still could, but I don’t. On Gloom days I am fearful. What if he falls, gets more muddled about this or that, what if he just feels scared and needs me to hold that heavy bridge up?

This is caring. You who do it, already know. Outside of our lives are many who support us and show great compassion. We need it, oh boy we do, but they haven’t a scooby about what it’s like for us, minute by minute, day by endless day and I hope they never do. Holding up a bridge, alone, scared, ageing, tired, exhausted, doubting, weak and sleepless is something we have fallen in to. We won’t abandon our post but the ask is great.

I salute all of you who care enough to be caring. This is my tribute to you.