Island Blog – Tribute

I always feel better after writing a blog. Is it, I ask myself, to offload, to teach, to preach, to, in other words, misuse my public forum? It’s a goodly question to ask myself. Once I have ferreted around in the cellars of myself, once I have come up feeling strong in my purpose, sure that it is not about me but about anyone else who may click with something I write, I write. This is one of those well-ferreted writes.

Today was troubled. The way it works for a full-time carer is this:- Day begins hopeful, trusting and light. Then one becomes two as the one in care descends the stairs, floating on metal poles and thanks to Major Tom, aka the chairlift. This is when the mode and mood of the day is proffered as IT. Now I have a choice and a decision to make. If the gloom descends with him, then I must attend to said gloom. I can resist it, but we all know resistance is futile. I can poke at it, ask questions, play bright, but I can hear my voice, in a slightly higher key, sounding sharp as badly cut tin. This won’t work. I lift my ass from my seat, round to the kitchen, make coffee, hot strong and black. Not enough. This gloom is following me, I can see it, smell it, feel its touch on my back. I swing about. Go Away! I hiss, but hissing works no better than resistance. I can feel it pulling at my skin, seeping in, changing me.

The day rolls slow. At 10 am I bake a cake, thinking, this will do it. It’s my usual flat pancake but with cherries which makes flat okay. Taste is everything, after all. We wander through the morning, him restless, moving moving moving all the time, the click and whir of the wheelchair setting my teeth on fire. Ears, I say, stop listening! I have always believed, and proved, that ears are obedient souls, if you organise them right. Pulling birdsong forward and pushing clicks whirs and other unpleasant noises back works well, for a while, but I must be vigilant. One relax and the click whirs are wild in my head whilst my teeth could burn down Rome, even from here. I read the affirmations on my kitchen wall. You can do this. I’m doing great. I believe in my dreams. This too shall pass. Those sorts of affirmations. Ya di ya I tell them today, but I don’t rip them down as I have in the past because that is resigning myself to the gloom. I cook, walk, feed birds, watch the clouds, berate Lady Moon for not showing me herself at 4 am and keep going, keep going, keep going.

It’s like holding up a bridge every single day. Just me (or just you). Mostly I can do this (so can you). Mostly. But it is exhausting, endless and with no end in sight. I have to be cheerful for two every single minute of every single day (so do you). I have to think ahead, plan, make sure the way is clear, be kind, laugh, smile, show up no matter how I feel or what I want. I could go a bit further for a walk. Easy. Not. I still could, but I don’t. On Gloom days I am fearful. What if he falls, gets more muddled about this or that, what if he just feels scared and needs me to hold that heavy bridge up?

This is caring. You who do it, already know. Outside of our lives are many who support us and show great compassion. We need it, oh boy we do, but they haven’t a scooby about what it’s like for us, minute by minute, day by endless day and I hope they never do. Holding up a bridge, alone, scared, ageing, tired, exhausted, doubting, weak and sleepless is something we have fallen in to. We won’t abandon our post but the ask is great.

I salute all of you who care enough to be caring. This is my tribute to you.

Island Blog – The Circus, Night Fairies and Life

I have baked a honey cake and drizzled it, put a wash on, changed a bed, dressed, applied slap, made a cauliflower cheese for supper, wished a grand-daughter happy unicorn birthday, swept the kitchen floor, prepared a salad, ate breakfast, fed the birds and the dog, danced to Ronan Keating’s new single and it is now 7 am. There is something manic about me, I am beginning to believe. Residue automatic morning-ness from when the tourist business was up and running, endless children, many of whom I didn’t know, also up and running, and food food food required by hundreds kept me cartwheeling from first light. Half the time there was little point washing up as meal demands bunched together like giggling girls on an outing. I whisked, beat, baked, stewed, roasted and steamed mountains of produce. It thinks me I am unable to step out of those running shoes, even now, when days are slow and gentle, mostly, with the exception of the odd crappy day wherein I cannot run for the life of me. My legs are leaden and my mind is a roundabout on speed. However, I am happy to report that such days are rare, not least because I can’t be bothered with any sort of sickness, mental or physical, disallowing either much space in the room. Be off with you, I say, but don’t go bothering anyone else because you are just not welcome. Try outer space.

Mornings bounce me like Tigger. I wake with the birds and absolutely cannot turn over for more sleep. Despite my passionate love for my recycled plastic bottle filled duvet and my feathery down pillows, I have too much energy fizzing through my veins to lie a minute longer. I have to be quiet, though. Himself won’t rise till about 8 and my kitchen is a floorboard below his bedroom. I don’t think they lagged things much in the 1870’s. I tiptoe through my tasks, interested, excited, curious and particularly curious when I discover that the washing pile is gone. Who has gone-d it? There is only me who washes in this house. I discover it a little later through a downstairs window, bobbing like bunting on the line. I have no recollection of hanging it there. Perhaps I didn’t. Perhaps the Night Fairies did it for me. How sweet they are. I remember them from my young harassed mother-days. They always surprised me with their kindnesses but there were times when I would rather they told me what they’d done because I might then have avoided wasting precious time in search of something I knew I had left just there the night before. Just there stares back at me emptily. I began to suspect collusion with the Night Fairies. Once, when I was certain of a pile of bed sheets awaiting a spin in the belly of my washing machine, I found them half way up the stairs, draped into an Aladdin’s cave and with two guilty looking collies curled up inside, each one enjoying a bowl of muesli.

Perhaps when life has been a circus for long enough, the circus becomes the life and each performer becomes the circus. I think I have. And I don’t mind one bit. I think the circus training has kept me bouncing through all sorts of horrible, kept me mostly up and taught me that nothing in life is going to get me down for long. I just wish I could share this with everyone else. Life is such a precious gift, and always too short. Living it right up to its end is the only path to happiness.

After all, stumble stones can always be turned into building blocks.

Island Blog – Fun

So, yesterday was all about love and cards and flowers and romantic dates. For some. Me……..? Well, I busied myself with the craft of housekeeping and caring right up to the evening, my favourite time of day (or is it night?) when the northern hemisphere teeters on the cusp of transition. It’s time for a shower, to put the tatties on to boil, to gee up the woodburner and to check the garage door is shut against Dennis. He could flip that old thing into matchsticks, taking out several solid things in passing, the way he is growling behind the sky.

On this cusp, after delivering a meal to himself as he sits encased in his pyjamas, his ears clamped shut inside the headphones, some TV series playing out on his screen, silent mouths moving in a dialogue to which I am not privy, I return to the kitchen, light myself a candle or two and pour a glass of wine. Happy Valentine’s I told myself and myself smiled. I love myself enough not to bother about such lovey dovey nonsense. I could clean the faces of the kitchen units; I could have another shower; I could sweep up the crumbs or I could go to the pub. Which is what I did. The kitchen unit cleaning thing almost got me. I had tunes playing and candles flickering shadows up the walls and it all looked rather pretty until I put on my specs and noticed that there was more to cleaning the units than I had thought heretofore. Some reddish blobs had the chutzpa to stick themselves right across one door and there was much dust along the horizontals. Blow that. This is not evening work. It was a quick shift into a jacket and boots and off I toddled, giving Growling Dennis a quick and filthy look en route.

It was fun. Fun is what I love best and the one thing that isn’t always available here unless I fun the flames of it all by myself. I’m pretty good at it, though I say so myself. By the time I left, I had hugged old mates, commiserated, reassured, discussed the excitement of historical geology and understood better the palaver involved in building a new house on an island already drunk on rain. Conversation and communication in a life that has lost so very much of both are as welcome as 12 red roses any day.

When I was a recalcitrant and bloody-minded teenager I sent myself valentine cards. It saved anyone else the bother, after all, and guaranteed that I wasn’t the sad girl without a boyfriend, horribly visible in the school playground, awash with shame and certain that she has terrible breath. Nowadays I believe boyfriends are highly overrated. It all starts out rosy but mostly that’s where it begins to stop. I heard of someone who was incandescent about not getting a card from her husband. I held in a smile because if that is how he feels about her then its better out in the open. Others keep the flame burning, I know that. I met a couple of them last night, still dancing and planning to dance right up to the end of love.

And I smiled at that too.