Island Blog – Repeat Daily

The way I see things when I am tired, stressed or fed up is never how they really are. I’m sure you know what I’m talking about. In certain moods or when pressure feels heavy as a truck on my head, I slip into a weird world, one full of victims with me being the biggest. I am at the mercy of whatever comes my way; my seeing becomes slanted, ditto my hearing and my poor underused brain turns into an untethered disco ball. Instead of being inside this body, I am all over the place, running here and there like a headless hen.

And then the next day comes, the next songbird dawn, the new light, and what happened yesterday seems small and insignificant, solvable in a few simple steps. Why I couldn’t see it that way yesterday beyonds me. Yes, I was tired of repeating things, gently; yes I was upset about the rain getting into my post box; yes I was lonely and wondering when life would begin and yes I was pitching for a fight. I guess the nice lady from the Council, just doing her job, is fortunate I didn’t get to speak to her. I have no idea what she called about, beyond a vague and fluffy explanation (and even that word is too long to describe what I did learn). Are we still shielding? Are we allowed to see anyone and would that be from Now or from July 31st, and are we still getting the food deliveries? I know the answer to the last question having just learned it from a friend, but the rest, himself nodding and saying No and Yes and then No again could mean he has signed us up for a pilot mission to Mars. I guess I will find out eventually, if a space suit arrives by carrier.

My point is that, in my strong and right mind, I can see all the mild irritations and the intense enfuryments as just things colliding with my just thoughts and just feelings. I can step back, breathe, observe and quantify, deconstruct and take appropriate action. When in a compromised state of being, it looks and feels as if I am under attack from a mysterious, invisible band of mercenaries, with me in their sights. Of course, it would be impossible, being an ordinary extraordinary human woman, to sustain such a peaceful equilibrium at all times and in all sets of circumstance. life isn’t like that for any of us. Tsunamis will rise and threaten to destroy; rain will seep into post boxes, mushing paper and packaging, days will feel trudgemonkey and food will go off in the humid heat, just before I go to re-heat it for dinner. Life is not plain sailing and we all know that. But, if I can set up an inner programme of self-encouragement, write down uplifting affirmations to stick on walls, seek conversation with friends and read good guide books – if I eat well, exercise, laugh a lot, show kindness, share love and think more often of others that of myself, I will have prepared myself for anything that might come my way on any given day.

Which is what I am doing this day. One day at a time.

Repeat daily.

Island Blog – Tribute

I always feel better after writing a blog. Is it, I ask myself, to offload, to teach, to preach, to, in other words, misuse my public forum? It’s a goodly question to ask myself. Once I have ferreted around in the cellars of myself, once I have come up feeling strong in my purpose, sure that it is not about me but about anyone else who may click with something I write, I write. This is one of those well-ferreted writes.

Today was troubled. The way it works for a full-time carer is this:- Day begins hopeful, trusting and light. Then one becomes two as the one in care descends the stairs, floating on metal poles and thanks to Major Tom, aka the chairlift. This is when the mode and mood of the day is proffered as IT. Now I have a choice and a decision to make. If the gloom descends with him, then I must attend to said gloom. I can resist it, but we all know resistance is futile. I can poke at it, ask questions, play bright, but I can hear my voice, in a slightly higher key, sounding sharp as badly cut tin. This won’t work. I lift my ass from my seat, round to the kitchen, make coffee, hot strong and black. Not enough. This gloom is following me, I can see it, smell it, feel its touch on my back. I swing about. Go Away! I hiss, but hissing works no better than resistance. I can feel it pulling at my skin, seeping in, changing me.

The day rolls slow. At 10 am I bake a cake, thinking, this will do it. It’s my usual flat pancake but with cherries which makes flat okay. Taste is everything, after all. We wander through the morning, him restless, moving moving moving all the time, the click and whir of the wheelchair setting my teeth on fire. Ears, I say, stop listening! I have always believed, and proved, that ears are obedient souls, if you organise them right. Pulling birdsong forward and pushing clicks whirs and other unpleasant noises back works well, for a while, but I must be vigilant. One relax and the click whirs are wild in my head whilst my teeth could burn down Rome, even from here. I read the affirmations on my kitchen wall. You can do this. I’m doing great. I believe in my dreams. This too shall pass. Those sorts of affirmations. Ya di ya I tell them today, but I don’t rip them down as I have in the past because that is resigning myself to the gloom. I cook, walk, feed birds, watch the clouds, berate Lady Moon for not showing me herself at 4 am and keep going, keep going, keep going.

It’s like holding up a bridge every single day. Just me (or just you). Mostly I can do this (so can you). Mostly. But it is exhausting, endless and with no end in sight. I have to be cheerful for two every single minute of every single day (so do you). I have to think ahead, plan, make sure the way is clear, be kind, laugh, smile, show up no matter how I feel or what I want. I could go a bit further for a walk. Easy. Not. I still could, but I don’t. On Gloom days I am fearful. What if he falls, gets more muddled about this or that, what if he just feels scared and needs me to hold that heavy bridge up?

This is caring. You who do it, already know. Outside of our lives are many who support us and show great compassion. We need it, oh boy we do, but they haven’t a scooby about what it’s like for us, minute by minute, day by endless day and I hope they never do. Holding up a bridge, alone, scared, ageing, tired, exhausted, doubting, weak and sleepless is something we have fallen in to. We won’t abandon our post but the ask is great.

I salute all of you who care enough to be caring. This is my tribute to you.