Month: June 2020

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Island Blog – Tribute

I always feel better after writing a blog. Is it, I ask myself, to offload, to teach, to preach, to, in other words, misuse my public forum? It’s a goodly question to ask myself. Once I have ferreted around in the cellars of myself, once I have come up feeling strong in my purpose, sure that it is not about me but about anyone else who may click with something I write, I write. This is one of those well-ferreted writes.

Today was troubled. The way it works for a full-time carer is this:- Day begins hopeful, trusting and light. Then one becomes two as the one in care descends the stairs, floating on metal poles and thanks to Major Tom, aka the chairlift. This is when the mode and mood of the day is proffered as IT. Now I have a choice and a decision to make. If the gloom descends with him, then I must attend to said gloom. I can resist it, but we all know resistance is futile. I can poke at it, ask questions, play bright, but I can hear my voice, in a slightly higher key, sounding sharp as badly cut tin. This won’t work. I lift my ass from my seat, round to the kitchen, make coffee, hot strong and black. Not enough. This gloom is following me, I can see it, smell it, feel its touch on my back. I swing about. Go Away! I hiss, but hissing works no better than resistance. I can feel it pulling at my skin, seeping in, changing me.

The day rolls slow. At 10 am I bake a cake, thinking, this will do it. It’s my usual flat pancake but with cherries which makes flat okay. Taste is everything, after all. We wander through the morning, him restless, moving moving moving all the time, the click and whir of the wheelchair setting my teeth on fire. Ears, I say, stop listening! I have always believed, and proved, that ears are obedient souls, if you organise them right. Pulling birdsong forward and pushing clicks whirs and other unpleasant noises back works well, for a while, but I must be vigilant. One relax and the click whirs are wild in my head whilst my teeth could burn down Rome, even from here. I read the affirmations on my kitchen wall. You can do this. I’m doing great. I believe in my dreams. This too shall pass. Those sorts of affirmations. Ya di ya I tell them today, but I don’t rip them down as I have in the past because that is resigning myself to the gloom. I cook, walk, feed birds, watch the clouds, berate Lady Moon for not showing me herself at 4 am and keep going, keep going, keep going.

It’s like holding up a bridge every single day. Just me (or just you). Mostly I can do this (so can you). Mostly. But it is exhausting, endless and with no end in sight. I have to be cheerful for two every single minute of every single day (so do you). I have to think ahead, plan, make sure the way is clear, be kind, laugh, smile, show up no matter how I feel or what I want. I could go a bit further for a walk. Easy. Not. I still could, but I don’t. On Gloom days I am fearful. What if he falls, gets more muddled about this or that, what if he just feels scared and needs me to hold that heavy bridge up?

This is caring. You who do it, already know. Outside of our lives are many who support us and show great compassion. We need it, oh boy we do, but they haven’t a scooby about what it’s like for us, minute by minute, day by endless day and I hope they never do. Holding up a bridge, alone, scared, ageing, tired, exhausted, doubting, weak and sleepless is something we have fallen in to. We won’t abandon our post but the ask is great.

I salute all of you who care enough to be caring. This is my tribute to you.

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Island Blog – Flapping at Clouds

Yesterday was a day of long hours, the end game of a week during which I wasted much energy flapping at the clouds with a tea towel and expecting them to move on, metaphorically speaking. I don’t know why such times come, nor when they will, but I know everyone has days like these. I used to scrabble about for reasons why, most of which required me to beat myself into scars with a bendy switch. I don’t bother now. Now I am well aware that there are forces at large who are invisible, all knowing and with the big picture in mind, unlike me down here inside my little life. I let them play with my mood and my mind and just wait for them to go, which they always do in the end. But oh my, it’s uncomfortable. My body feels like I swallowed a hippo and my brain is a peat bog after heavy rains. I have to make myself do the ordinary tasks and cannot settle to anything creative. I stare out at nothing and wish the hours away. There is no reason for this; nothing has drastically changed; it is, as if, punishment is due for some heinous crime, one I have no recollection committing, or, worse, that I am sick. Long experience of this scoffs that nonsense away. It is just as it is.

I know these discomforts have come to learn me something; that I will, after the air settles back around me like a soft blanket, understand something that wasn’t on my radar before. It’s a shake up, a wake up, a take a look up thingy. Oft times it is easy to keep on going on without noticing the whole. Sometimes ‘noticing’ the whole, through the eyes of my own limited vision, is merely me circling through the same precepts, the same thoughts, opinions and ‘absolute truths’ until the goodly wise decide on action to stop me eating my own tail. I’m glad of it, once the discomfort has passed, because even if it takes me a while to learn the new learning, the new way to do an old thing, or, even, to relegate said old thing to the compost heap and to reach for a new thing, I am curious by nature and well aware that stuckness is death in life. Lack of motion and the refusal to allow new ways to infiltrate my old ways would kill me off inside a month. Maybe that’s just me. I know that some of my ancients were very happy to be stuck in old ways. We is all different and some more different than most. I know this too, but being stuck is not my nature, even if I can become so without any trouble at all. I always have my eyes on a better me. However, I cannot do this alone. How could I? I am the one who folds into little life without a second thought, scrabbling on through the tall grasses with the odd tea-towel flap at clouds, should they irritate me. I need those goodly spirits with vision, the high flyers, the ones who already know me better than I will ever know myself; who understand and who are kindly-meant. I need to lean into the storm in order to feel the vital force of it.

This morning I don’t need my tea-towel. This morning I know they have moved on. I can tell because my belly is not kicking up a storm and my heart is more Beethoven’s Pastorale, less Def Lepard. I also know that something will dawn on me soon enough and I will add that to my very long list of Aha’s, taking whatever I learn into myself so that I can inch a little further forward in this journey of life. I am certain all of us know these times. We are human, after all, grounded and unaware of so very much. Oh, we read the news, know the science, understand the proven truths, but we have no explanation for the Mystery. We can try. We can argue points, choose different names, fix on gods or God or no gods at all, but we cannot fully explain any of it. And there is something wonderful about that.

All I know is this. As I quest through this amazing life, grounded among the tall grasses of this beautiful and broken world, my mind is free to roam and, in being vulnerable, I know I am fully alive.

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Island Blog – What if…..

Take a whole day in your hands and look at it. Inside there is disparity. There are lifts and shifts, downs and frowns, light and gloom, noise and silence, thought and unthought, time and no time. Colours swing from rainbow to mud and back to rainbow. Words spin like hornets or flit butterfly bright, soft edged, fragile, all around you. Views are wide or through a lens darkly, moods yoyo, news is good, news is bad. It is a day and we all have them, inhabit them, cannot avoid them, if we are the fortunate ones. What we might need to be reminded of is our part within each day. We, just for the record, are the lead. We are the main character, the one who can lift an audience to hurrahs and shouts for more, or who can send them all home at half time. The way we engage on stage is critical to what happens next, the hornets or the butterflies, the rainbows or the mud and the impact we have on our audience will affect them more than we can ever imagine.

If you inspire me I will leave all inspired, not to be a part in your play but to play the lead in my own. I will be planning rainbows and butterflies all the way home in the rain with the wrong shoes on. It won’t matter because you have inspired me, elevated me to my higher self, the one who doesn’t blame or shame, moan or grumble, lean back into the fat and greedy arms of inevitability and hopelessness. Whatever I may think of my lack of talent requires a re-think. We all have talent, we all have gifts, even if we were never encouraged to develop them as children, even then. I must look long and hard at myself to find this little seedling of talent and cosset it until even I believe it’s really there, inside little un-influential me. And I mustn’t stop there. I must work, daily, on that self-trust and belief. Nobody else is going to do this for me, only me, in the quiet of my heart, in the silence of my mind, in an ordinary day, the one I hold right now in my hands.

Many settle for less when unless would elevate, would fly them. What if I fail? Ah…..but what if you fly? Many complain and grumble about the state of the world this very day, how hopeless it all seems, how poorly managed, how clearly they can see disaster looming for us all. And do nothing about it. Who am I to change the world? Who are you not to? This day will never come again. This day, regardless of the state of the world, is a huge opportunity for change. It could be a change inside the home, a change of habit, a decision to begin something. It could be the rearrangement of furniture, a garden re think, a kindness offered, a new book ordered, it could be anything. But to moan and rant about the out there is to lose this day in pointlessness. Turn in, my friends, Look long and hard at this new morning and decide something, anything. Let a new wild begin. What if, what if, what if I could do something to effect change?

What if, indeed.