cancer

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Island Blog – Travelling in Light

Last full day, today, under an African sun, and, although I am (always) sad to leave this beautiful country, I am ready to fly back through space and time, to land in my own country, my own life. Visits to Africa heal me, help me move forward in renewed hope, and also allow me, by some magic, to let go of whatever gave me ants in my pants during the year before. This time, I had some tough shit to go through, the legacy of which rippled on through my body and affected my mind in ways that surprised me. I was, I thought, quite in order with myself. Then, when I fell very ill, and cancer was discovered, I still felt in order with myself. I am strong, a warrior, I can overcome this, or so I thought, and, to a high degree and with the assistance of an excellent surgeon and tremendous medical support and expertise, I did, or we did. But the body holds the score, as we all know, so that, even when a mind is made up to survive and thence to thrive, the body lags behind. In turn, this lagging thing affects a mind, so that, although I had moved on, I was constantly reminded of a new frailty. And a new strength. It was confusing, as if a fight was on between body and mind. No matter how clear I was on my decision to move on after such a trauma, I was often reminded that a new compromise was required.

This visit, around family, under sun, inside adventures and conversations, I rise. Not by mental force alone, but with a gentling of body and mind, as if they now move together and as one. I said I knew myself before, but was still aware of anxieties and hesitations around my new limits. Now, I work with those limitations as if they aren’t limitations at all, but just who I am now. And I have learned from this change, this rather strange pretence that I can force a collusion between mind and body, regardless of trauma, as if it was nothing much and blow it away on the winds. That doesn’t work, I know it now, even if that determination has held me up and bright in 2024. What I needed was time to heal and the patience to accept that truth, to walk with it, open and humble, until all of me finally got together again.

We have had many wonderful adventures, all the while sharing ideas and jokes, plans and observations. We have watched the wild Atlantic and swum in the warm Indian Ocean. We have seen humpbacks breach, dolphins burst the waves wide open, colourful birds flying overhead; we have dined and wined and picnicked and walked through Fynbos, Fleis, and across miles of white sand ,peppered with an array of spectacular shells I never see back home. We have seen the sun set the ocean on fire, stayed with friends who live between mountains so high as to disappear into cloud. We have wandered among shops in Capetown, laughed at the terrible driving whenever it rains, and stood in awed silence beneath the upside down stars. And all the while, I could feel the gentle hand of a natural healing.

I know I fly back into winter, but there will always be a winter. I know I don’t have enough warm clothing. I know I will have to drive back to the ferry through tricky weather and that the ferry may not sail through gale force winds. I also know my wee home awaits me, the wood burner, the candles, my friends, my community. I return as me, but renewed, re-jigged, at peace with my life, because I have travelled in light, one that is strong and sustainable, one that tells me who I am, and who I am is just fine with me.

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Island Blog – Purview, Find your way

This word came in like a cat, slicing away when I tried to grab it, but leaving me with half an understanding and wanting to follow. I get the ‘view’ bit. But why the pur? Well, as a latin student, a history student, about a gazillion years ago and with the whispers of learning still like flit fairies inside my old head, I scrabble about. I do.

Recently, I have been looking at my past and its influence on the now of me. This now ‘She’ who walks with cancer, with all that happened last year. The cellulitis, the healing, the discovery of cancer, the subsequent marvellous of needles, biopsies, surgery and radiotherapy and , thus I arrive at Purview. She is still a cat in my smile-thinking. She’s a dismissive but loving feline. She might respond, she might not. She is always watching, but slow on committing. She sounds like me.

I am influenced, infected, by all of my past. We all are. The word Purview, which encompasses all of what i said, offers a lift. A lift from almost anything anyone has experienced. I know how the world tries to re-acclimatise anyone who doesn’t toe the line.

Find your way.

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Island Blog – Awake the Echoes

Before I left on my journey into the unknown, my head was a full chorus of discordant voices, a clamjamfry of chaos, each voice certain it was in the right place and in the right choir, which none of them were. Once I realised that I held the baton, I regained control, thanked them for turning up and sent the whole lot packing, sans pay. This confusion was birthed from my own fears, of cancer, of therapy, of travel, of the ferry sinking, the train crashing, or not running at all, of the Zap Centre not able to find my name, etc etc. I imagined the latter and agreed with myself that I would be anyone at all, just to get this treatment into my past.

As I moved into the freezing and draughty corridor pre boarding, an actual ferry sat docked and gape-moothed, swallowing cars and vans and bikes, I felt those think-eejits choking out last breaths. Funny that……once I get the hell on with something that affears me, my imagined horrors become as wisps of nothing. The ferry did not sink. The train left on time and arrived in the right station. The hotel was expecting me and my room was comfortable and safe. For five nights and days I moved with growing confidence, walking the short route for morning radio-zappery, and thence to the Maggie’s Centre where they know just how to welcome all of us cancer folk, and those connected, who want to talk or don’t want to talk, who want tea or coffee or just to wander alone.

The imagined fears think me. Echoes, they are, of old voices, the shoulds and coulds and musts and might-but-didn’ts; of failures perceived, in fact, of all that our spectacular minds can bring to bear, in order to pulp us down. I can summon up a massive storm just thinking about a short trip somewhere, and, I know that many laugh at that. Overthinking, too much imagination, catastrophising, I’ve heard it all, and used to define myself as ‘faulty’ from such opinions, but not now. Now I have learned that, for someone like me who sees these possible disasters, albeit ridiculous, is, in fact, a wise person. I still go, I still feel the fear, but I still step out. A lot of the fears, breathed out from lungs of brass, I flap away, but some I pay attention to and then prepare, because I damn well will not give in or up or over, never mind the oldness and aloneness of me. And if, and when, I hear the echoes awakening, the old fears, the invitation to say no to every single adventure, even the weeny ones, I rise. Every time I rise. I don’t say it’s a breeze because it isn’t. It’s a bloody effort even to admit I am thinking about this journey or that. But, I will not settle on the settle.

Naturally, like everyone else, I would like the echoes to go away for ever and ever, but they won’t. They are rooted in a very long past, parents, their parents, and their parents, crusty old judges, confined in the corsets of their times. They are in our blood, and they will rise every time we feel anxious about anything. We dont have to listen, well, we do, because pushing them away only lasts a wee while. We need to say, hallo, I hear you, but you are not helpful to me so please go away. It works. Then you, or I, pull up our boots, feel shit scared, and get out there, no matter what comes next.

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Island Blog – Isolation, Connection, Brave

When I talk with people, initiate the conversation via some made up nonsense such as ‘Do you know where the loo is, or where the tea bags are, or Is this Radiotherapy treatment room E?’ Even though I have all the answers anyroad, there’s a sort of lock and load thing that happens, eye contact, a connection. I do this wherever I go, for myself, for my own elevation from isolation……(I can sense too many ‘tions arising here) but, also because my biggest love is of people, all people, any people and everywhere or anywhere. I know about isolation, or the feeling of it, the cut and hollow and dark of it, and not because I am alone, but because I know how it feels to be lonely. I used to think it was just me, that everyone else in their colourful clothing, their smart car, the pretty picture they painted as a completely happy couple, family, friendship et lala, meant that I was the weirdo who just fell short of the mark. I know differently now, now that I talk to people anywhere and everywhere. Not one of us lives the dream we dreamed, or very few.

In Waiting room E for Radiotherapy, I find astonishment at a cancer diagnosis. This person went for an ordinary eye test, another for a check up for a persistent sore throat, yet another for a cough, a sore back, a limpy leg. Not one of us could catch the cancer word and bring it in to ourselves. Some are still reeling, the process of such an acceptance, a long one. But each person can still chuckle, can still be who they were before and with a story. Both in the waiting room and in the Maggie’s centre, I have learned about others lives, and these connections, this eye contact, this sharing, has lifted us both, in each encounter.

We all walk in isolation, at times in our lives. I remember doing just that when my husband was alive. What is important, is to find someone who is on the same path at the same time. Of course, paths divide and one goes this way and the other, that, but just for a moment in time, we can meet and say, without words, hallo. I see you, and you see me, and isolation just became connection.

But first, we must brave up and talk.

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Island Blog – A Crooked- Voiced Crow

I’m hearing sounds unfamiliar to me. Above my hotel lurks a crow with a crooked voice. Sounds to me as if he has wrongly wired vocal chords. I watch him make these strange calls and when a mate joins him on the CCTV camera, it thinks me. I might have, and did, at first, consider him a case for sympathy. With that voice, will he ever attract a mate? The rasp is more ‘Go Away’ than ‘Come Hither’ after all, but how wrong was my judgement on the matter!

Inside the warm and welcoming Maggie’s centre, I watch people. Over there is a man who has throat cancer, his voice, produced via a box implant is a hoarse and raspy whisper, his own voice gone forever. Was he a tenor or a baritone, loud-spoken or honey gentle or a bit of both, depending on circumstances? Did he shout, once, as he will no more, or sing, or summon the troops into battle? I will never know. Then there is the guy who has terminal liver cancer and is just out of hospital. Despite this, he is full of jokes and twinkle, talking to everyone, ready, always ready to laugh.

I watch newbies wander in, eyes darting left and right, looking for a safe landing. I hear the welcomes from the staff, the ‘Come Hither’ in their warm and compassionate eyes. Gradually, the newbie’s coat comes off, she is guided to the kettle, the coffee and the tea, the bowls of fruit, chocolates, biscuits and cake. We sit in sunshine behind the glass walls, talking, wishing each other all the hopes for full recovery. I am aware that some cannot hope for that, but, in talking to them, laughing with them, I can see the cancer slide away from their eyes, just for a moment, an hour, a day. Back home, back into the relentless barrage of tests and therapies, reality may well re-invade, and hope can be a heavy weight to lift up each day, for some. I can afford to play the fool, I am well and ridiculous and always full of mischief. (Mischief…….interesting word to pull apart, methinks.) But, even though I am so lucky, so without pain or a possibly hopeless road ahead, I am accepted because I have cancer. We are a new family and there is much to learn about each other, many random conversations to have, many opportunities within which to uplift each other. If I lived here, I would definitely volunteer in this centre. I would meet and greet, lift and encourage, play the daft eejit, sympathise and sit beside another broken bodied soul. And it isn’t just the one with cancer who needs such. There are partners, children, siblings and friends, all in a permanent state of shock, all battling with an overactive imagination, or with a sharp and agonising truth.

I am learning, as we all must, not to hide our diagnoses nor our feelings around them, but to stand up and out, as survivors, however long that survival might prove to be. To find each other, people we would probably never ever meet, had cancer not found a landing within our trusting bodies, a chink, a broken paving stone, a pothole, an unintentional welcome to a predator. I hear, and see, multi cultures in here. I see all shapes, all sizes, listen to all accents, and all of them are beautiful to me now, in a way they never were before. How easy it is, especially in a city, to march past all of this beauty without even a ‘Hi’. I’ve been ‘Hi-ing’ my walk to my radiotherapy appointment each morning, sometimes to the astonishment of the person coming towards me, so used are they to their own agenda and a perceived unfriendliness of everyone they don’t already know. Mostly, however, I receive a smile and a ‘hi’ back and that thinks me too. We can become so very lonely as we live out our lives, not because we want to, but perhaps through fear, or the ordinary process of keeping our broken parts invisible to all. We cover them in clothes and make-up. We keep our arms close to our bodies, our voices low. But what we all long for, in truth, is connection. We just don’t feel confident enough to reach out for it, to face the risk of rejection, for fear of looking foolish. But if we could just, like the crooked-voiced crow, call out anyway, smile to each other, say ‘Hi’ to a line of folk in a bus stop, a queue for radiotherapy, anywhere, everywhere, I know that loneliness would lift, just a little, and, who knows, it could lead to new friendships, as it has for me.

For anyone interested in learning more about Maggie’s Centres, I am visiting the one in Glasgow, on the Gartnavel Campus, opposite the Beatson Cancer Centre, but these havens of support are everywhere.

Just go to http://www.maggies.org

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Island Blog – A Lift into Sparkle

Oh my gosh was I tired today. I remember so many people answering me ‘tired’ when I asked How are you?, and, I confess, I could feel irritation rise in my gut. I wanted to push for a single positive in their life, almost to shake them. Oh, what I have learned since those days! I guess its experiential compassion. And, more, that, the pretence that life is always wonderful, is good, in balance. But an overdose of ‘wonderful’ is, frankly, both unreal and impossible and therefore not to be believed. However, I was brought up this way. You left your ‘stuff’ at home and, out there, you were upbeat and cheerful. There was a dichotomy in that, nonetheless because once back home the lode re-landed with a big heavy thump and nobody, including me had addressed the ‘stuff’ or even knew how to. I heard it chortle like a goblin as it held me in stasis, thrilling with its power and control. For years I avoided asking the How Are You question, or asking it whilst in full flight, not waiting for the answer, afeared that involving meant solving. Not now. Now I know what it is like to feel lonely, lost and scared, my ‘stuff’ all consuming, the goblin growing into a giant. Perhaps that is where they were, those ones I hurtled past in my busy and productive life, so called. Perhaps, had I stopped to ask, to listen, to lay a hand on another’s, to say I’m here, I might have made a difference to them. Although I could never sort their stuff, not even my own, that act of friendship just might have lifted them a little at a pivotal moment in their lives whilst taking nothing away from my own. In fact, it might have shifted my perception and that, I have learned, is always a good thing. A self-centred life is all very well, but nobody learns a thing from such a life, including the person living it.

I am just returned from a visit to the cancer centre in Glasgow. The hotel is near the clinic, minutes away in fact. I found Google maps and did the whole thing of current location and destination. But, then, I couldn’t work out how to hold my phone. This way takes me left, that way, right. I could wander for days if I don’t get this right. Here comes someone, airpods in, moving purposefully. We make eye contact. Can you help me please, I ask, with a smile. I get one back and I can feel the warmth of it. He stops. Sure, he says. He must be all of 25, and in a hurry. Yet still, he is kind. I may have electric blue hair, but he will have clocked the wrinkles. I’m heading for the cancer clinic, I say, oncology department. He melts. You say cancer and everyone melts, as I do. I think it is up here…..I wave my arm across most of Glasgow. He grins. Yes, but bring that arm in. It is just above us, up that wee hill, just a couple of minutes. That’s the main entrance. I thank him and we share an eye smile. He could be my son and he is kind and he stopped for me. Braced and re-energised, I march up said hill and down again, a little, down toward the entrance, where everyone looks down. Of course they do. Whether going in or coming out, there is a cancer in there somewhere.

Through the doors and I am assailed with signs, people moving by, more people than I see in a week on the island. Nothing fits with my instructions. I swing round and back again, looking daft. Can I help you? asks a woman with a badge. Oh, yes please, I am here for a CT scan. Radiography, she says, and points to the big sign I obviously missed. I march on, more corridors, more possible rights and lefts. I ignore them all, arriving at a reception desk where I am greeted with a big smile and a welcome, as if I was the DJ for their party. It chuckles me and I love it. I give my details and am guided to take a seat, which I take amongst others who look up through sad eyes and down again. I am here with cancer. They have cancer. We are all scared.

I politely stick my butt in a chair and settle beneath the ghastly tube lighting. We are slightly off from the main drag, one that hums with passing nurses, technicians, equipment, patients in wheelchairs, patients in rolling beds. We all watch. We all thank our lucky stars, for now. After fifteen minutes of a silence that begs, longs to evolve into chat, I know it is I who will do this. I am the DJ. How can I begin, I wonder. It thinks me, a lot, and then I find something. Does anyone know if it’s ok to keep a mobile on? (I know the answer, but that’s not. the point). Oh, you can connect, a woman says, she, with her husband in a wheelchair, You just look on the wall, there’s the wifi and the password. I thank her and rise, crossing the divide. I am now respectfully between her and another man with a stick. I smile at both, casting a rainbow. I sign in, not that I give a damn about wifi right now, and see my Poppy dog as my screensaver. I pivot to the woman, show her. Oh, she says, Oh, and asks me to show her husband, which I do. He tells me their border terrier died 12 weeks ago and they are both lost without him. I say how sorry I am and that my own wee girl is also dead, not so long ago. I ask questions about their dog, how they feel, and warmth rises. Then I go back to my seat and ask the young woman beside me if she has a dog. She has, she had, she also mourns her wee yorkie, is completely lost without her. We all talk dog for a while, and if I look, I can see the connections multiply across the thoroughly scrubbed floor of a cancer waiting room. It’s like theNorthern Lights and as beautiful. The last man in, the one with the stick is yet to be drawn in. So, I say, do you have a dog? He beams. I do, a German Shepherd. A beautiful girl. Tell me about her, I say, leaning forward, and he does and every single one of us is thoroughly engaged.

And, despite what any of us are going through or facing, I could see tiredness lift into a sparkle.

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Island Blog – Sharing love on a Train

After a wonderful few nights with my grand girls, I stepped onto the train for a CT scan at the Beatson Cancer Clinic. I like the name. It has Beat in its construct. And, the evening before, I was teaching my grand girls beatboxing. At least, I think that’s the term. They, like all the other grandlings in my big family, in some way or other, are into music and beat. We played with mouth sounds, many of which, in ordinary life, are advisably contained. A hiss, a growl, a guttural whaaaa, etc, but as beat, anything, pretty much, goes. We walked beneath a closed sky, watched what we could see of the filming of Outlander at Doune Castle, squelched through mud, passed horses and actors and a medieval film set. It was exciting just to be there.

Then The train. My lovelies sent me off with kisses and promises through windows long needing a clean, but, I’m guessing, it has rained for yonks, the tracks luffing up mud and whatnot for some weeks, months. Nonetheless, within the confines of this efficient tube of transport, I made friends, not least because my short hair is electric blue. It’s like an invitation to conversation, and, I understand, it’s not for everyone, but it is just that for me. A lovely woman up-beat from me (in other words, the next set of seats) eye-glanced me, and I smiled. When she came up to me, just before her stop, I knew she felt safe, and I knew it was my smile that invited her in. She could have been going to divorce proceedings, a difficult meet, or to a wonderful job, but she came in. I love your hair, she said, stranger to stranger. It tells me something I may have forgotten in the crazy of my life. I smiled again, and nodded. She’ll do the rest. Then, in slid a young man. He was polite, respectful and we did the smile thing. He worked on something, paper and pen. Then, from a tap behind, he responded to a woman who couldn’t make her mobile do something she wanted. He respectfully helped her, and after this was done, he turned back to me and I said, That was a gift?

He said, no, and yes. I love to help. He asked about me. I said I was heading for a CT scan pre radiotherapy. He said nothing, but his eyes said everything. When he left, he bowed and took my hand, his young brown one in my old white one. A moment I will remember, even if I never got his name.

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Island Blog – Inspiradiation and a Zap Map

Many things inspire me, people too. Something said out loud or communicated through eyes, and in silence, but received, nonetheless. Moments, sounds, lyrics, intuitions, experiences, and many more besides. If I catch these inspirations, like butterflies in a net, they all hold a beauty and intensity, a teaching. But, only if I catch them. I know how it is to barge on through doorways and over sills or along pathways with only a to-do list. Chased by Time, and always just this side of utterly exhausted, it is easy to miss much. When focus is on the familiar, the to-do list, the endless corridors leading to yet another bloody doorway that opens on to more tasks only I can complete, intuition and the chance of inspiration getting so much as a look-in, is unlikely at best. Not now, however, now that I am old and alone and when I have endless time to catch butterflies in the net of my mind. Beautiful things, butterflies, although sometimes I might catch an earwig or a toad, so broad is my sweep. But those critters also bring opportunities for reflection. Perhaps that throwaway comment or that too-quick turn-away upset someone, and this earwig or this toad also have something for me to take in and to consider.  Not all catchings are pleasant, at first. Of course, the key with anything I catch is to eventually release it, be it the beautiful butterfly of epiphany, or the unattractive and dully coloured body of a uncomfortable realisation. One which demands humble action. 

Soon, I am offski to the cancer clinic for a ‘planning CT scan’, where the professionals will create their Zap Map. Through the wonders of technology, they will see precisely where to point the radiotherapeutic laser, ensuring, so they tell me, that all trace of cancer, if any is lurking, will be zapped unto death. Five days is all, and not even the whole of those five days, but a few minutes. Although unpleasant reactions can list bigly horrors, not one of them will affect me, because nothing ever has before. I am blest with ridonculous health, and a big inspiration net, always to hand. I will pay attention to everything and everyone, sweeping a wide catchment area wherever I go. Across the road, in a bus queue, in the hospital amongst others being zapped, the nurses, the doctors. Inside the hotel, the lift, on the stairs, through a window, along the street, butterflies abound. I just know it. And I will return, as I always do, humbled at what I see. A homeless girl, a weary bus driver, someone I meet in a doorway, a harrassed business man in a big rush, a fraught mother weighed down by a cling of children. I will hear sounds I never hear in this wild place. The chatter of a train on the tracks, a colourful hue of voices in languages I cannot speak, the cut of someone’s jib, the smell of exhaust fumes, of perfume, takeaway food and so on. And I will sweep it all in, catch it in my net.

Even the radiation will inspire me, for I am always curious like Alice, eager to learn, not facts but what is really means to be human, to be wonderful, lost, broken, keen, kind, and an integral part of all those ties, colours and stories that bind us together.  

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Island Blog – I Can Do This

I heard from the surgeon and all is gone, for now. No chemo, just radiotherapy in the new year. The three cancer buggers, all small, have been removed plus three lymph nodes, all of those free of cancer. A precautionary tale. My African son flew over to be with me for the aftermath, which wasn’t ‘math’ at all, and we were cavorted back to the island by my eldest. Prior to that I was with my sister who made me feel important and loved, as we went for pre op needlepoint and an information overload, well, for me, with my head tucked under my wings and my brain like spaghetti, but not for her.

Then, home, back to my beloved island. Not mine, of course, but this wild place homes me, grounds me, safes me. However, for over two weeks I was not alone. Africa was here, and the sharing, the kitchen dances inside his arms, loved me up. I don’t know how long it has been since I felt that warmth, enjoyed that spontaneity. In a loooooooong marriage, things get boring, disappointing and, although the light of love can spark, it is just now and then, or even just then.

So, he is gone. Back home now with his lovely wife and animals and into 35 degrees just like that. I spoke with him today. Too hot, he says. I cloak up to walk the four legs, blustering on, like Winnie the Pooh, beneath wind-creaked limbs, big enough to take out a whole mansion, the leaves flipping around my face, and with mud underfoot. And I snort at the ‘too hot’ thing.

I miss him. I miss hearing his footfall as he rises from sleep. I miss his voice, the sight of him filling a doorway, our shared laughter, the play of words between us over a scatter of candles. I miss the feeling of complete safety because he was here.

I am here. I am alone. It is winter. I am IT. And I can do this.

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Island Blog – The Jousting Woman

Women used to joust, you know, back in the jousting days. Needless to say, they had to look like men, breasts bound. But, coated in gmail, no, chainmail, sorry, all they needed were huge biceps, strong thighs for clamping a horse, hands free, great eye-arm precision and bloody mindedness; a Boudicca sort of attitude and a kick ass determination to be a fighter, regardless of their sex. Altough jousting was fast and furious, it rarely ended in tragedy, but only in collapsed pride. Women, wiry and flexible are less rigid, less stuck in the ways of men and, more importantly, less encumbered by ego and swagger. In fact, swaggering is not what we bother with at all. Wrong shape for starters.

I will get the call tomorrow, the one from my wonderful surgeon, the one who will tell me the wotwot of my nexting. I will hear that only radiotherapy is next, after Christmas, and for one week. Or, I will hear that more surgery is required and, then, the radiotherapy. I have said I refuse chemo. I’ve seen too many of my community go for it, only to lose a year, at least, in sickness and pale-faceless and loss of self-confidence, and then, for some, to fade away anyway. No bloody thanks. However, if I was 40 (loved that birthday) I might have chosen differently, but I am not, I am 70 and that’s a fricken long life. I have lived like nobody else has lived. I have adventured every single day, dealt with chaos, damage, disaster and celebrations which everyone who came would agree were the best. Me and the old bugger were excellent party hosts. Just saying.

Not that I am going under. Whatever my results are, I am ready and peaceful. I cannot control the most of it, but I can control me and my attitude and. my thankfulness and my humour and that mischievous imp behind my eyes and in my throat. I can do that because life is the most wonderful thing. My life is the most wonderful thing. So, btw, is yours because without it, there is nothing much.

So, although I began with jousting, I still like the thought of Joan of Arc-ing myself up to meet the stranger which is Cancer. I doubt I could hold the chainmail, nor clamp the horse, hands free, but there is something about flying there, about letting go, and not just of the joust pole; like a spirited game-on thingy, the pounding of hooves, the tension, the timing, the invisibility.

Whatever I hear tomorrow will take me forward, and forward is the only way for a jousting woman.